BMJ Open (Apr 2022)

Parents’ experiences regarding neonatal care during the COVID-19 pandemic: country-specific findings of a multinational survey

  • Karen Walker,
  • Charles C Roehr,
  • Mandy Daly,
  • Aisling Walsh,
  • Luc J I Zimmermann,
  • Camilla Gizzi,
  • Mary Kinney,
  • Corrado Moretti,
  • Gigi Khonyongwa-Fernandez,
  • Johanna Kostenzer,
  • Charlotte von Rosenstiel-Pulver,
  • Julia Hoffmann,
  • Silke Mader,
  • Agnes vanden Hoogen,
  • Eleni Vavouraki,
  • Ilknur Okay,
  • Kerstin Mondry,
  • Kylie Pussell

DOI
https://doi.org/10.1136/bmjopen-2021-056856
Journal volume & issue
Vol. 12, no. 4

Abstract

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Objectives The COVID-19 pandemic has disrupted healthcare systems, challenging neonatal care provision globally. Curtailed visitation policies are known to negatively affect the medical and emotional care of sick, preterm and low birth weight infants, compromising the achievement of the 2030 Development Agenda. Focusing on infant and family-centred developmental care (IFCDC), we explored parents’ experiences of the disruptions affecting newborns in need of special or intensive care during the first year of the pandemic.Design Cross-sectional study using an electronic, web-based questionnaire.Setting Multicountry online-survey.Methods Data were collected between August and November 2020 using a pretested online, multilingual questionnaire. The target group consisted of parents of preterm, sick or low birth weight infants born during the first year of the COVID-19 pandemic and who received special/intensive care. The analysis followed a descriptive quantitative approach.Results In total, 1148 participants from 12 countries (Australia, Brazil, Canada, China, France, Italy, Mexico, New Zealand, Poland, Sweden, Turkey and Ukraine) were eligible for analysis. We identified significant country-specific differences, showing that the application of IFCDC is less prone to disruptions in some countries than in others. For example, parental presence was affected: 27% of the total respondents indicated that no one was allowed to be present with the infant receiving special/intensive care. In Australia, Canada, France, New Zealand and Sweden, both the mother and the father (in more than 90% of cases) were allowed access to the newborn, whereas participants indicated that no one was allowed to be present in China (52%), Poland (39%), Turkey (49%) and Ukraine (32%).Conclusions The application of IFCDC during the COVID-19 pandemic differs between countries. There is an urgent need to reconsider separation policies and to strengthen the IFCDC approach worldwide to ensure that the 2030 Development Agenda is achieved.