Palliative Medicine Reports (Jul 2020)

Expanding the Understanding of Content of End-of-Life Dreams and Visions: A Consensual Qualitative Research Analysis

  • Rachel M. Depner,
  • Pei C. Grant,
  • David J. Byrwa,
  • Sarah M. LaFever,
  • Christopher W. Kerr,
  • Kelly E. Tenzek,
  • Susan LaValley,
  • Debra L. Luczkiewicz,
  • Scott T. Wright,
  • Kathryn Levy,
  • MSW AdvStat

DOI
https://doi.org/10.1089/PMR.2020.0037
Journal volume & issue
Vol. 1, no. 1
pp. 103 – 110

Abstract

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Background: Research has established End-of-Life Dreams and Visions (ELDVs) as prevalent, meaningful valid experiences that may help patients cope with illness and approaching death. However, no inductive qualitative analysis has explored the phenomenology of ELDVs from the perspective of hospice homecare patients. Objective: The purpose of this study is to evaluate the content of ELDVs by using a rigorous qualitative approach. Design: Five hundred forty-eight ELDVs were collected from weekly interviews of hospice homecare patients and analyzed by using Consensual Qualitative Research Methodology. Settings/Subject: Participants were enrolled in a county-wide hospice homecare program between January 2013?March 2015. Results: The following domains emerged: (1) Interpersonal, (2) Affective Experience and Reflection, (3) Activities, and (4) Setting/Location. Conclusions: This study suggests that ELDV content may include a broader spectrum of experiences that reflect waking life than previously believed. Clinical implications suggest that it may be important for providers to engage with ELDVs, as they are psychologically significant experiences that may be a source of clinical insight.

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