Open Health (Dec 2023)

Economic burden and health-related quality of life in patients with neurofibromatosis type 1 in Greece

  • Sotiropoulou Lamprini,
  • Loupas Marios Athanasios,
  • Adamopoulou Mary,
  • Athanasiou Dimitris,
  • Kalogeropoulou Maria

DOI
https://doi.org/10.1515/ohe-2023-0017
Journal volume & issue
Vol. 4, no. 1
pp. 603 – 18

Abstract

Read online

Neurofibromatosis (NF) is a group of rare genetic disorders characterized by the development of tumours that may affect the brain, spinal cord, and the nerves that send signals between the brain and spinal cord and all other parts of the body. The disease burden on Greek patients and caregivers is unknown.

Keywords