Saudi Pharmaceutical Journal (Oct 2023)

Level of knowledge and quality of life among Saudi caregivers of Parkinson’s disease patients: A study from a tertiary hospital in Riyadh, Saudi Arabia

  • Abdulhadi A. Al Ofair,
  • Muhanned Alamri,
  • Sultan H. Alshehri,
  • Ziyad A. Alzahrani,
  • Alwaleed K. Alrumaih,
  • Wajid Syed,
  • Mohamed N. Al-Arifi,
  • Moahmmed A. Assiri,
  • Taim A. Muayqil,
  • Abdulrahman Alwhaibi

Journal volume & issue
Vol. 31, no. 10
p. 101765

Abstract

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Purpose: We aimed to assess the family caregivers’ level of knowledge and attitudes about Parkison’s disease (PD), identify factors affecting their knowledge, evaluate their quality of life (QoL) and factors influencing it and to define the effect of PD on activities of daily living (ADLs) of PD patients. Method: We developed and validated a questionnaire to assess the level of knowledge and attitudes of family caregivers toward PD, effects of PD on caregivers’ QoL as well as its effects on activities of daily living (ADLs) of patients from the caregivers’ perspective. A scoring system was utilized and SPSS was used to evaluate the differences in responses between the groups; p 5 h/day (75.0% in > 5–10 hrs; 52.4% in > 10–24 hrs; p = 0.024). Most caregivers confirmed their QoL had declined, yet the male caregivers had better QoL than females (p = 0.026). Longer caregiving time was associated with decline (p = 0.016) and severe effect on QoL of caregivers (p = 0.04). Conclusion: Caregivers of PD patients had a low level of knowledge. Female caregivers had significantly higher level of PD knowledge than their male counterparts. Low level of PD knowledge was significantly associated with shorter caregiving time per day. Longer caregiving time was significantly associated with a decline in caregivers’ QoL. Increasing awareness and knowledge among caregivers is necessary to ensure better treatment outcomes and improve the QoL of both caregivers and patients.

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