Journal of Patient Experience (Oct 2023)

Survey of Challenges, Goals, and Interventions for Patients With Lymphoma During Aftercare Consultation: An Exploratory Cross-Sectional Study

  • Jolanda HHM Friesen-Storms PhD, RN,
  • Danny JL Quadvlieg-Delnoy MSc, RN,
  • Roel JW van Kampen PhD, MD,
  • Trudy van der Weijden PhD, MD,
  • Emmylou Beekman PhD,
  • Gerrie JJW Bours PhD,
  • Kon-Siong G Jie PhD, MD

DOI
https://doi.org/10.1177/23743735231204470
Journal volume & issue
Vol. 10

Abstract

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This study described the challenges, personal goals, and interventions of patients with lymphoma in various domains of life that emerged from an aftercare consultation based on shared decision-making principles with a nurse practitioner. A cross-sectional exploratory design was used with a sample of 49 patients. Challenges, goals, and interventions were measured based on 4 domains of life: “my health,” “my activities,” “my environment” and “my own way.” Most challenges were experienced in the domain of “my health,” which included a loss of physical condition, reduced muscle strength, and fatigue. Patients set personal goals related to the experienced challenges, such as restoring physical condition to prediagnosis levels. Accordingly, 45 patients (84%) chose an intervention to improve physical condition and muscle strength and 33 patients (67%) chose to be referred to specialized care.