Instruments Measuring Self-Care in Children and Young Adults With Chronic Conditions: A Systematic Review

Valentina Biagioli; Giuseppina Spitaletta; Valeria Kania; Rachele Mascolo; Orsola Gawronski; Annachiara Liburdi; Giulia Manzi; Michele Salata; Ercole Vellone; Emanuela Tiozzo; Immacolata Dall’Oglio

doi:10.3389/fped.2022.832453

Frontiers in Pediatrics (Mar 2022)

Instruments Measuring Self-Care in Children and Young Adults With Chronic Conditions: A Systematic Review

Valentina Biagioli,
Giuseppina Spitaletta,
Valeria Kania,
Rachele Mascolo,
Orsola Gawronski,
Annachiara Liburdi,
Giulia Manzi,
Michele Salata,
Ercole Vellone,
Emanuela Tiozzo,
Immacolata Dall’Oglio

Affiliations

Valentina Biagioli: Professional Development, Continuing Education and Research Service, Bambino Gesù Children’s Hospital, IRCCS, Rome, Italy
Giuseppina Spitaletta: Professional Development, Continuing Education and Research Service, Bambino Gesù Children’s Hospital, IRCCS, Rome, Italy
Valeria Kania: Department of Paediatric Emergency, Bambino Gesù Children’s Hospital, IRCCS, Rome, Italy
Rachele Mascolo: Pediatric Semi-Intensive Care Area/Unit, Bambino Gesù Children’s Hospital, IRCCS, Rome, Italy
Orsola Gawronski: Professional Development, Continuing Education and Research Service, Bambino Gesù Children’s Hospital, IRCCS, Rome, Italy
Annachiara Liburdi: Professional Development, Continuing Education and Research Service, Bambino Gesù Children’s Hospital, IRCCS, Rome, Italy
Giulia Manzi: Professional Development, Continuing Education and Research Service, Bambino Gesù Children’s Hospital, IRCCS, Rome, Italy
Michele Salata: Rheumatology Unit, Bambino Gesù Children’s Hospital, IRCCS, Rome, Italy
Ercole Vellone: Department of Biomedicine and Prevention, University of Rome “Tor Vergata,”Rome, Italy
Emanuela Tiozzo: Professional Development, Continuing Education and Research Service, Bambino Gesù Children’s Hospital, IRCCS, Rome, Italy
Immacolata Dall’Oglio: Professional Development, Continuing Education and Research Service, Bambino Gesù Children’s Hospital, IRCCS, Rome, Italy

DOI: https://doi.org/10.3389/fped.2022.832453
Journal volume & issue: Vol. 10

Abstract

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Children and young adults (CYAs) with chronic conditions need to engage in self-care to improve their quality of life. This study aimed to retrieve the literature on instruments to assess self-care in CYAs living with chronic conditions and evaluate the psychometric proprieties of the instruments retrieved. A systematic literature review was conducted on six databases to identify peer-reviewed papers that described or used an evaluation instrument of self-care in CYAs with chronic conditions. Twenty-three articles describing 11 instruments of self-care were identified. Five instruments (45.45%) were developed for specific diseases, while six (54.54%) for various chronic illnesses. Most of the instruments were focused on treatment adherence within self-care maintenance (i.e., behaviors to maintain illness stability), excluding the monitoring of clinical parameters or the management of exacerbations. This review provides an overview of available instruments that measure self-care in CYAs with chronic conditions, which health professionals could use for patient education.

Published in Frontiers in Pediatrics

ISSN: 2296-2360 (Online)
Publisher: Frontiers Media S.A.
Country of publisher: Switzerland
LCC subjects: Medicine: Pediatrics
Website: http://journal.frontiersin.org/journal/pediatrics

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