BMJ Open (Nov 2023)

Evaluation of variation in special educational needs provision and its impact on health and education using administrative records for England: umbrella protocol for a mixed-methods research programme

  • Stuart Logan,
  • Ruth Gilbert,
  • Tamsin Ford,
  • Johnny Downs,
  • Jugnoo Rahi,
  • Ania Zylbersztejn,
  • Katie Harron,
  • Kate Boddy,
  • Bianca De Stavola,
  • Vincent Nguyen,
  • Isaac Winterburn,
  • Kate Lewis,
  • Lucy Karwatowska,
  • Lorraine Dearden,
  • Sarah Barnes,
  • Jacob Matthews,
  • Matthew Lilliman,
  • Jennifer Saxton,
  • Antony Stone,
  • Kristine Black-Hawkins

DOI
https://doi.org/10.1136/bmjopen-2023-072531
Journal volume & issue
Vol. 13, no. 11

Abstract

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Introduction One-third of children in England have special educational needs (SEN) provision recorded during their school career. The proportion of children with SEN provision varies between schools and demographic groups, which may reflect variation in need, inequitable provision and/or systemic factors. There is scant evidence on whether SEN provision improves health and education outcomes.Methods The Health Outcomes of young People in Education (HOPE) research programme uses administrative data from the Education and Child Health Insights from Linked Data—ECHILD—which contains data from all state schools, and contacts with National Health Service hospitals in England, to explore variation in SEN provision and its impact on health and education outcomes. This umbrella protocol sets out analyses across four work packages (WP). WP1 defined a range of ‘health phenotypes’, that is health conditions expected to need SEN provision in primary school. Next, we describe health and education outcomes (WP1) and individual, school-level and area-level factors affecting variation in SEN provision across different phenotypes (WP2). WP3 assesses the impact of SEN provision on health and education outcomes for specific health phenotypes using a range of causal inference methods to account for confounding factors and possible selection bias. In WP4 we review local policies and synthesise findings from surveys, interviews and focus groups of service users and providers to understand factors associated with variation in and experiences of identification, assessment and provision for SEN. Triangulation of findings on outcomes, variation and impact of SEN provision for different health phenotypes in ECHILD, with experiences of SEN provision will inform interpretation of findings for policy, practice and families and methods for future evaluation.Ethics and dissemination Research ethics committees have approved the use of the ECHILD database and, separately, the survey, interviews and focus groups of young people, parents and service providers. These stakeholders will contribute to the design, interpretation and communication of findings.