Clinical data and Pediatric Quality of Life Inventory (PedsQL™) scores for children with duodenal atresia
Toby I. Vinycomb,
Alison Browning,
Matthew L.M. Jones,
John M. Hutson,
Sebastian K. King,
Warwick J. Teague
Affiliations
Toby I. Vinycomb
Department of Paediatric Surgery, The Royal Children's Hospital, Melbourne, Australia; Surgical Research Group, Murdoch Children's Research Institute, Melbourne, Australia
Alison Browning
Department of Paediatric Surgery, The Royal Children's Hospital, Melbourne, Australia; Surgical Research Group, Murdoch Children's Research Institute, Melbourne, Australia
Matthew L.M. Jones
Department of Paediatric Surgery, The Royal Children's Hospital, Melbourne, Australia; Surgical Research Group, Murdoch Children's Research Institute, Melbourne, Australia; Department of Surgery, University of Sydney, Sydney, Australia
John M. Hutson
Surgical Research Group, Murdoch Children's Research Institute, Melbourne, Australia; Department of Surgery, University of Sydney, Sydney, Australia; Department of Urology, University of Melbourne, Melbourne, Australia
Sebastian K. King
Department of Paediatric Surgery, The Royal Children's Hospital, Melbourne, Australia; Surgical Research Group, Murdoch Children's Research Institute, Melbourne, Australia; Department of Surgery, University of Sydney, Sydney, Australia; Department of Paediatrics, University of Melbourne, Melbourne, Australia
Warwick J. Teague
Department of Paediatric Surgery, The Royal Children's Hospital, Melbourne, Australia; Surgical Research Group, Murdoch Children's Research Institute, Melbourne, Australia; Department of Surgery, University of Sydney, Sydney, Australia; Department of Paediatrics, University of Melbourne, Melbourne, Australia; Corresponding author. Department of Paediatric Surgery, The Royal Children's Hospital, 50 Flemington Road Parkville, Victoria, 3052, Australia.
This article presents raw data obtained from a prospectively collected database of children with duodenal atresia at tertiary pediatric surgery hospital. For all potential participants, pertinent demographic, clinical and operative data was obtained from the database. Potential participants were then contacted and invited to complete a Pediatric Quality of Life Inventory (PedsQL™) 4.0 core score and gastrointestinal module questionnaires. Participant's response to each item in the questionnaires is provided, as well as their calculated health related quality of life scores. Data has the potential to be reused in future studies examining quality of life in duodenal atresia, paediatric gastrointestinal conditions, surgical neonatal conditions and children with trisomy 21. Further analysis and discussion is contained in related research article titled “Quality of life outcomes in children born with duodenal atresia” [1]. Keywords: Duodenal atresia, Duodenal obstruction, Quality of life, Long term outcomes, Intestinal atresia, Congenital abnormalities
