P013: A long-term disease monitoring program in patients with long-chain fatty acid oxidation disorders

• Michal Inbar-Feigenberg,
• Barbara Burton,
• Amarilis Sanchez-Valle,
• Jerry Vockley,
• Anjali Aggarwal,
• Joel Hetzer,
• Bridget Reineking,
• Andrew Grimm

Affiliations

Michal Inbar-Feigenberg

The Hospital for Sick Children, Toronto, Ontario, Canada

Barbara Burton

Ann & Robert H. Lurie Children's Hospital, Chicago, IL

Amarilis Sanchez-Valle

University of South Florida, Tampa, FL

Jerry Vockley

Children's Hospital of Pittsburgh of UPMC, Pittsburgh, PA

Anjali Aggarwal

University of Minnesota, Minneapolis, MN

Joel Hetzer

Ultragenyx Pharmaceutical Inc., Novato, CA

Bridget Reineking

Ultragenyx Pharmaceutical Inc., Novato, CA

Andrew Grimm

Ultragenyx Pharmaceutical Inc., Novato, CA