Alzheimer’s Research & Therapy (Mar 2019)
Lewy Body Dementia Association’s Research Centers of Excellence Program: Inaugural Meeting Proceedings
- Bethany Peterson,
- Melissa Armstrong,
- Douglas Galasko,
- James E. Galvin,
- Jennifer Goldman,
- David Irwin,
- Henry Paulson,
- Daniel Kaufer,
- James Leverenz,
- Angela Lunde,
- Ian G. McKeith,
- Andrew Siderowf,
- Angela Taylor,
- Katherine Amodeo,
- Matt Barrett,
- Kimiko Domoto-Reilly,
- John Duda,
- Stephen Gomperts,
- Neill Graff-Radford,
- Samantha Holden,
- Lawrence Honig,
- Daniel Huddleston,
- Carol Lippa,
- Irene Litvan,
- Carol Manning,
- Karen Marder,
- Charbel Moussa,
- Chiadi Onyike,
- Fernando Pagan,
- Alexander Pantelyat,
- Victoria Pelak,
- Kathleen Poston,
- Joseph Quinn,
- Irene Richard,
- Liana S. Rosenthal,
- Marwan Sabbagh,
- Douglas Scharre,
- Sharon Sha,
- Holly Shill,
- Yasar Torres-Yaghi,
- Tina Christie,
- Todd Graham,
- Ian Richards,
- Mike Koehler,
- Brad Boeve
Affiliations
- Bethany Peterson
- Lewy Body Dementia Association
- Melissa Armstrong
- University of Florida
- Douglas Galasko
- University of California
- James E. Galvin
- Florida Atlantic University
- Jennifer Goldman
- Rush University Medical Center
- David Irwin
- University of Pennsylvania
- Henry Paulson
- University of Michigan
- Daniel Kaufer
- University of North Carolina
- James Leverenz
- Cleveland Clinic
- Angela Lunde
- Mayo Clinic campus
- Ian G. McKeith
- Newcastle University
- Andrew Siderowf
- University of Pennsylvania
- Angela Taylor
- Lewy Body Dementia Association
- Katherine Amodeo
- University of Rochester
- Matt Barrett
- University of Virginia
- Kimiko Domoto-Reilly
- University of Washington
- John Duda
- University of Pennsylvania
- Stephen Gomperts
- Massachusetts General Hospital
- Neill Graff-Radford
- Mayo Clinic campus
- Samantha Holden
- University of Colorado
- Lawrence Honig
- Columbia University
- Daniel Huddleston
- Emory University
- Carol Lippa
- Thomas Jefferson University
- Irene Litvan
- University of California
- Carol Manning
- University of Virginia
- Karen Marder
- Columbia University
- Charbel Moussa
- Georgetown University Medical Center
- Chiadi Onyike
- Johns Hopkins University
- Fernando Pagan
- Georgetown University Medical Center
- Alexander Pantelyat
- Johns Hopkins University
- Victoria Pelak
- University of Colorado
- Kathleen Poston
- Stanford University
- Joseph Quinn
- Oregon Health & Science University
- Irene Richard
- University of Rochester
- Liana S. Rosenthal
- Johns Hopkins University
- Marwan Sabbagh
- Cleveland Clinic Las Vegas
- Douglas Scharre
- The Ohio State University
- Sharon Sha
- Stanford University
- Holly Shill
- Barrow Neurological Institute
- Yasar Torres-Yaghi
- Georgetown University Medical Center
- Tina Christie
- Lewy Body Dementia Association
- Todd Graham
- Lewy Body Dementia Association
- Ian Richards
- Lewy Body Dementia Association
- Mike Koehler
- Lewy Body Dementia Association
- Brad Boeve
- Mayo Clinic campus
- DOI
- https://doi.org/10.1186/s13195-019-0476-1
- Journal volume & issue
-
Vol. 11,
no. 1
pp. 1 – 4
Abstract
Abstract The first Lewy Body Dementia Association (LBDA) Research Centers of Excellence (RCOE) Investigator’s meeting was held on December 14, 2017, in New Orleans. The program was established to increase patient access to clinical experts on Lewy body dementia (LBD), which includes dementia with Lewy bodies (DLB) and Parkinson’s disease dementia (PDD), and to create a clinical trials-ready network. Four working groups (WG) were created to pursue the LBDA RCOE aims: (1) increase access to high-quality clinical care, (2) increase access to support for people living with LBD and their caregivers, (3) increase knowledge of LBD among medical and allied (or other) professionals, and (4) create infrastructure for a clinical trials-ready network as well as resources to advance the study of new therapeutics.
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