Validation of the International Classification of Functioning, Disability and Health Core Sets for traumatic brain injury from Australian community patient perspectives

Abstract

Objective: To examine the validity of the Comprehensive and Brief International Classification of Functioning, Disability and Health (ICF) Core Sets for Traumatic Brain Injury for patients with traumatic brain injury living in the community in Australia. Design: Qualitative methodology using focus groups and individual interviews. Patients: Community-dwelling adult persons with traumatic brain injury. Methods: Patients sustaining traumatic brain injury with post-traumatic amnesia between September 2009 and August 2013, selected from the Royal Melbourne Hospital Trauma Registry, were invited to participate in the study. Participants were asked structured questions based on the ICF framework. Digital recordings of the discussions were transcribed in full for linking to the ICF categories. Results: Saturation of data was reached after 5 groups involving 21 participants. Participants identified as relevant 77.7% (n = 108/139) and 100% (n = 23/23) of the Comprehensive and Brief ICF Core Sets for traumatic brain injury, respectively. Additional ICF categories identified in 2 or more groups were: b180 “experience of self and time functions”; b250 “taste function”; b265 “touch function”; b530 “weight maintenance function”; b780 “sensation related to muscles and movement”; and d650 “caring for household objects”. Conclusion: The study found additional ICF categories to consider and supports the use of the ICF Core Sets for traumatic brain injury in Australian adults in the community.

Keywords

• brain injury
• traumatic
• rehabilitation
• qualitative research
• focus groups
• self-report