Palliative Medicine Reports (Dec 2020)

Research Cooperative Groups in Pediatric Palliative Care Research

  • Terrah Foster Akard,
  • Mary Jo Gilmer

DOI
https://doi.org/10.1089/PMR.2020.0043
Journal volume & issue
Vol. 1, no. 1
pp. 321 – 325

Abstract

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Research cooperative groups aim to facilitate collaborative and rigorous palliative care research. The purpose of this article is to (1) demonstrate how cooperative groups are taking formal and sustainable steps with commitment to pediatric palliative care research programs and (2) provide an example of how one cooperative group is implementing these innovative efforts to partner with programs to integrate pediatrics on an expanding scale. Details are described for how pediatric studies can benefit from cooperative group infrastructure and expertise. In turn, we describe how cooperative groups can benefit from collaborating on pediatric studies through broadening of data dictionaries, data repositories, and reach in palliative care research communities.

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