Development of a spiritual-based palliative care model for the quality of life of people with HIV/AIDS

Abstract

People living with HIV (PLHIV) require a focus on their quality of life to prevent deterioration. This study aims to establish a spiritual-based palliative nursing model to enhance the quality of life for PLHIV. A cross-sectional study of 225 PLHIV receiving treatment at Said Sukanto Hospital, Jakarta. Data, including demographic, disease, psychological, spiritual, support, services, spiritual-based palliative care, spiritual meaning in illness experience, and quality of life variables, were collected using a researcher-modified questionnaire. Data were analyzed using descriptive and structural analysis through Partial Least Square Equation Modeling (SEM-PLS). The outer model demonstrated construct validity (λ > 0.5) and high reliability (composite reliability > 0.7). The inner model exhibited moderate power (R2 > 0.33) and predictive relevance (1.009). Goodness-of-fit indicators (RMS Theta = 0.072, NFI = 0.971, SRMR = 0.098) confirmed the model's suitability. Hypothesis testing indicated the significance of all variables (p < 0.05). The findings support the application of a spiritual-based palliative nursing model to enhance the quality of life for PLHIV. This model offers a holistic approach encompassing physical, psychological, social, and spiritual well-being, providing a comprehensive framework for healthcare providers and policymakers to improve care for PLHIV.

Keywords

• Palliative
• PLHIV
• quality of life
• spiritual meaning