Evaluation of a community-based performance arts programme for people who have experienced stroke in the UK: protocol for the SHAPER-Stroke Odysseys study
Fiona Jones,
Nick Sevdalis,
Daisy Fancourt,
Tayana Soukup,
Carmine Pariante,
Ioannis Bakolis,
Andy Healey,
Jean Harrington,
Rachel E Davis,
Carolina Estevao,
Anthony Woods,
Nikki Crane,
Maria Baldellou Lopez,
Lucinda Jarret
Affiliations
Fiona Jones
Faculty of Health Social Care and Education, St Georges University of London, London, UK
Nick Sevdalis
Centre for Implementation Science, Health Service and Population Research Department, King`s College London, London, UK
Daisy Fancourt
Department of Behavioural Science and Health, University College London, London, UK
Tayana Soukup
1 Department of Surgery and Cancer, Faculty of Medicine, Imperial College London, London, UK
Carmine Pariante
Department of Psychological Medicine, King’s College London Institute of Psychiatry Psychology and Neuroscience, London, UK
Ioannis Bakolis
Department of Biostatistics and Health Informatics, Institute of Psychiatry, Psychology & Neuroscience, London, UK
Andy Healey
King`s Health Economics, Health Service, and Population Research Department, King`s College London, London, UK
Jean Harrington
Psychological Medicine, Institute of Psychiatry, Psychology & Neuroscience, King`s College London, London, UK
Rachel E Davis
Centre for Implementation Science, King’s College London, London, UK
Carolina Estevao
Psychological Medicine, Institute of Psychiatry, Psychology & Neuroscience, King`s College London, London, UK
Anthony Woods
Department of Psychological Medicine, Institute of Psychiatry, Psychology, and Neuroscience, King`s College London, London, UK
Nikki Crane
Culture Team, King`s College London, London, UK
Maria Baldellou Lopez
Centre for Implementation Science, King`s College London Institute of Psychiatry Psychology and Neuroscience, London, UK
Introduction Stroke survivors, once in the community, face challenges with their long-term rehabilitation care and present higher levels of loneliness, depression and anxiety than the rest of the population. A community-based performance arts programme, Stroke Odysseys (SO), has been devised to tackle the challenges of living with stroke in the UK. In this study, we aim to evaluate the implementation, impact and experiences of SO for stroke survivors.Methods and analysis Scaling-up Health Arts Programmes: Implementation and Effectiveness Research (SHAPER)-SO aims to scale-up SO to 75 participants and 47 stakeholders, while simultaneously evaluating the effectiveness and implementation of the programme. The main research aim is to evaluate the implementation, effectiveness, impact and experiences of a community-based performance arts programme (SO for stroke survivors). This mixed-methods study will evaluate the experience and impact of SO on those participating using mixed methods (interviews, observations and surveys) before and after each stage and carry out non-participant observations during a percentage of the workshops, training and tour. Data will be analysed using quantitative and qualitative approaches. This is a study within the SHAPER programme.Ethics and dissemination Ethical approval has been granted by the King’s College London PNM Research Ethics Panel, REC reference: LRS/DP-20/21–21549. Written informed consent will be sought for participants and stakeholders. The results of the study will be reported and disseminated at international conferences and in peer-reviewed scientific journals.Trial registration number NCT04864470.
