“It's a way of life”: Results from the Perceptions of Pain in Haemophilia study

Abstract

Pain is recognised as a subjective phenomenon, often defined as ‘whatever the experiencing person says it is, existing whenever the experiencing person says it does’. Pain is a critical aspect of life for many people with haemophilia (PWH) but is under-recognised and inconsistently managed by clinicians. As haemophilia management moves towards non-factor-based treatments which may normalise life experience, it is unclear how this will impact on the experience and management of pain.

Keywords

• pain
• chronic pain
• analgesia
• haemophilia
• patients’ views