Medicina (May 2021)
European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (EUROMENE): Expert Consensus on the Diagnosis, Service Provision, and Care of People with ME/CFS in Europe
- Luis Nacul,
- François Jérôme Authier,
- Carmen Scheibenbogen,
- Lorenzo Lorusso,
- Ingrid Bergliot Helland,
- Jose Alegre Martin,
- Carmen Adella Sirbu,
- Anne Marit Mengshoel,
- Olli Polo,
- Uta Behrends,
- Henrik Nielsen,
- Patricia Grabowski,
- Slobodan Sekulic,
- Nuno Sepulveda,
- Fernando Estévez-López,
- Pawel Zalewski,
- Derek F. H. Pheby,
- Jesus Castro-Marrero,
- Giorgos K. Sakkas,
- Enrica Capelli,
- Ivan Brundsdlund,
- John Cullinan,
- Angelika Krumina,
- Jonas Bergquist,
- Modra Murovska,
- Ruud C. W. Vermuelen,
- Eliana M. Lacerda
Affiliations
- Luis Nacul
- London School of Hygiene and Tropical Medicine, Faculty of Infectious and Tropical Diseases, London WC1E 7HT, UK
- François Jérôme Authier
- Faculty of Medicine Créteil—Paris Est, 94010 Creteil, France
- Carmen Scheibenbogen
- Institute of Medical Immunology, Charité-Universitätsmedizin Berlin, 10117 Berlin, Germany
- Lorenzo Lorusso
- Neurology and Stroke Unit—Neuroscience Department—A.S.S.T.—Lecco, 23900 Merate, Italy
- Ingrid Bergliot Helland
- National Advisory Unit on CFS/ME, Oslo University Hospital, Rikshospitalet OUS, 0372 Oslo, Norway
- Jose Alegre Martin
- Chronic Fatigue Unit, Hospital Universitari Vall d’Hebron University Hospital (VHIR), Universitat Autònoma de Barcelona, E-08035 Barcelona, Spain
- Carmen Adella Sirbu
- Central Military Emergency University Hospital, Titu Maiorescu University, 040441 Bucharest, Romania
- Anne Marit Mengshoel
- Institute of Health and Society, Medical Faculty, University of Oslo, Box 1089 Blindern, 0317 Oslo, Norway
- Olli Polo
- Bragée ME/CFS Center, 115 26 Stockholm, Sweden
- Uta Behrends
- Department of Pediatrics, School of Medicine, Technical University of Munich, 80333 Munich, Germany
- Henrik Nielsen
- Privat Hospitalet Danmark, 2920 Charlottenlund, Denmark
- Patricia Grabowski
- Department of Hematology, Oncology and Tumor Immunology, Institute for Medical Immunology, Charite Medical School, 10117 Berlin, Germany
- Slobodan Sekulic
- Medical Faculty Novi Sad, University of Novi Sad, 21000 Novi Sad, Serbia
- Nuno Sepulveda
- Centre of Statistics and Its Applications, University of Lisbon, 1749-016 Lisbon, Portugal
- Fernando Estévez-López
- Erasmus MC University Medical Center, 3015 Rotterdam, The Netherlands
- Pawel Zalewski
- Department of Hygiene, Epidemiology, Ergonomics and Postgraduate Education, Nicolaus Copernicus University in Torun, Collegium Medicum, 85-067 Bydgoszcz, Poland
- Derek F. H. Pheby
- Society and Health, Buckinghamshire New University (retired), High Wycombe HP11 2JZ, UK
- Jesus Castro-Marrero
- Division of Rheumatology, ME/CFS Research Unit (Lab 009–Box 02), Vall d’Hebron Hospital Research Institute (VHIR), Val d’Hebron Hospital Research Unit (VIHR), Passeig de la Val d’Hebron 119-129, E-08035 Barcelona, Spain
- Giorgos K. Sakkas
- Department of PE and Sports Science, University of Thessaly, 421 00 Trikala, Greece
- Enrica Capelli
- Department of Earth and Environmental Sciences, University of Pavia, 27100 Pavia, Italy
- Ivan Brundsdlund
- Department of Regional Health Research, University Hospital of Southern Denmark, 5000 Odense, Denmark
- John Cullinan
- School of Business & Economics, National University of Ireland Galway, University Road, H91 TK33 Galway, Ireland
- Angelika Krumina
- Department of Infectiology and Dermatology, Riga Stradins University, LV-1067 Riga, Latvia
- Jonas Bergquist
- Department of Chemistry—Biomedical Center, Analytical Chemistry and Neuro Chemistry, Uppsala University, 751 23 Uppsala, Sweden
- Modra Murovska
- Institute of Microbiology and Virology, Riga Stradins University, LV-1067 Riga, Latvia
- Ruud C. W. Vermuelen
- CFS/ME Medical Centre, 1078 Amsterdam, The Netherlands
- Eliana M. Lacerda
- Department of Clinical Research, Faculty of Infectious and Tropical Diseases, London School of Hygiene and Tropical Medicine, Keppel Street, London WC1E 7HT, UK
- DOI
- https://doi.org/10.3390/medicina57050510
- Journal volume & issue
-
Vol. 57,
no. 5
p. 510
Abstract
Designed by a group of ME/CFS researchers and health professionals, the European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (EUROMENE) has received funding from the European Cooperation in Science and Technology (COST)—COST action 15111—from 2016 to 2020. The main goal of the Cost Action was to assess the existing knowledge and experience on health care delivery for people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in European countries, and to enhance coordinated research and health care provision in this field. We report our findings and make recommendations for clinical diagnosis, health services and care for people with ME/CFS in Europe, as prepared by the group of clinicians and researchers from 22 countries and 55 European health professionals and researchers, who have been informed by people with ME/CFS.
Keywords
