Communications Medicine (Oct 2022)
Feasibility and ethics of using data from the Scottish newborn blood spot archive for research
- Sarah Cunningham-Burley,
- Daniel L. McCartney,
- Archie Campbell,
- Robin Flaig,
- Clare E. L. Orange,
- Carol Porteous,
- Mhairi Aitken,
- Ciaran Mulholland,
- Sara Davidson,
- Selena M. McCafferty,
- Lee Murphy,
- Nicola Wrobel,
- Sarah McCafferty,
- Karen Wallace,
- David StClair,
- Shona Kerr,
- Caroline Hayward,
- Andrew M. McIntosh,
- Cathie Sudlow,
- Riccardo E. Marioni,
- Jill Pell,
- Zosia Miedzybrodzka,
- David J. Porteous
Affiliations
- Sarah Cunningham-Burley
- Centre for Biomedicine, Self and Society, Usher Institute, University of Edinburgh
- Daniel L. McCartney
- Centre for Genomic and Experimental Medicine, Institute of Genetics and Cancer, University of Edinburgh, Western General Hospital
- Archie Campbell
- Centre for Genomic and Experimental Medicine, Institute of Genetics and Cancer, University of Edinburgh, Western General Hospital
- Robin Flaig
- Centre for Medical Informatics, Usher Institute, University of Edinburgh, Nine, Edinburgh Bioquarter
- Clare E. L. Orange
- NHS GGC Biorepository, Level 3, Laboratory Medicine Building, Queen Elizabeth University Hospital
- Carol Porteous
- Centre for Biomedicine, Self and Society, Usher Institute, University of Edinburgh
- Mhairi Aitken
- Centre for Biomedicine, Self and Society, Usher Institute, University of Edinburgh
- Ciaran Mulholland
- Edinburgh Clinical Research Facility, University of Edinburgh, Western General Hospital
- Sara Davidson
- Edinburgh Clinical Research Facility, University of Edinburgh, Western General Hospital
- Selena M. McCafferty
- NHS GGC Biorepository, Level 3, Laboratory Medicine Building, Queen Elizabeth University Hospital
- Lee Murphy
- Ipsos MORI Scotland, Links House
- Nicola Wrobel
- Ipsos MORI Scotland, Links House
- Sarah McCafferty
- Ipsos MORI Scotland, Links House
- Karen Wallace
- Medical Genetics, Room 2:041, School of Medicine, Medical Sciences and Nutrition
- David StClair
- School of Medicine, Medical Sciences and Nutrition
- Shona Kerr
- MRC Human Genetics Unit, Institute of Genetics and Cancer, University of Edinburgh, Western General Hospital
- Caroline Hayward
- MRC Human Genetics Unit, Institute of Genetics and Cancer, University of Edinburgh, Western General Hospital
- Andrew M. McIntosh
- Centre for Clinical Brain Sciences, Division of Psychiatry, University of Edinburgh, Royal Edinburgh Hospital
- Cathie Sudlow
- Centre for Medical Informatics, Usher Institute, University of Edinburgh, Nine, Edinburgh Bioquarter
- Riccardo E. Marioni
- Centre for Genomic and Experimental Medicine, Institute of Genetics and Cancer, University of Edinburgh, Western General Hospital
- Jill Pell
- Institute of Health and Wellbeing, University of Glasgow
- Zosia Miedzybrodzka
- Medical Genetics, Room 2:041, School of Medicine, Medical Sciences and Nutrition
- David J. Porteous
- Centre for Genomic and Experimental Medicine, Institute of Genetics and Cancer, University of Edinburgh, Western General Hospital
- DOI
- https://doi.org/10.1038/s43856-022-00189-2
- Journal volume & issue
-
Vol. 2,
no. 1
pp. 1 – 8
Abstract
Cunningham-Burley, McCartney, Campbell, Flaig, Orange et al. assess the ethics and potential benefit of secondary data use from newborn blood spot archives for research in a Citizen’s jury that agreed this was in the public interest. They also investigate and demonstrate the feasibility of using the archives for research purposes.
