Role of community-based health clubs in promoting patients’ health education for diabetes self-care management: an interventional qualitative study in a Ugandan urban setting

Abstract

Background Self-care management support is a core component of the Chronic Care Model that emphasises the need for empowering and preparing patients to manage their healthcare. In diabetes mellitus (DM) management, health education towards self-care empowers patients to make day-to-day decisions on their own disease and live with a healthy lifestyle. Although several strategies have been undertaken to improve the management of DM in Uganda, little has been done to empower patients to manage their own health. Community-based health clubs have been suggested as a novel way of improving diabetes management especially in settings with uneven distribution of healthcare facilities and inaccessibility to healthcare services that limit patients’ awareness of the disease and self-care management. This interventional study was aimed at exploring the role of community-based health clubs in promoting patients’ health education for diabetes self-care management.Methods A cross-sectional qualitative study was conducted among 20 participants using focus group discussions with each having six to eight members. Only patients with diabetes who seek routine diabetes healthcare services at Wakiso Health Centre IV and had participated in the 8-week community-based health clubs’ health education sessions were recruited for the study. The audio-recordings were transcribed verbatim and translated into English; thematic data analysis was conducted to generate codes and themes. Similar codes were merged and a group consensus was reached on coding discrepancies.Results Three major themes on the role of health clubs in promoting patients’ health education were merged from the study. These include promoting sharing of experiences among patients, improving awareness of healthy self-care practices and offering sufficient patient–health worker interaction time.Conclusions This is the first publication reporting on the role of community-based health clubs in promoting patients’ health education towards diabetes self-care management in Uganda. The ability to share experiences among patients, improve patients’ awareness on healthy living practices and the increased health worker–patient interaction time contribute heavily to the capacity-building for self-care among patients.