Habiter avec une maladie respiratoire chronique : les dynamiques territoriales du Care dans le cas de la mucoviscidose

Abstract

When a child suffers from a chronic respiratory disease, his parents question their ways of dwelling. They want to protect their child from the common risks inside and outside their home. They seek to adapt their living environment to take care of his respiratory health. The article analyses the residential path of Joshua’s family, a young boy with cystic fibrosis. It shows why his parents have chosen to live in Brittany. It highlights the various qualities that make a region an attractive place to live and care for a sick child. It underlines the need for a balance between the characteristics of the environment (such as climate), a suitable healthcare offer, and the society’s sensitivity and commitment to dealing with a rare disease like cystic fibrosis.

Keywords

• sick child
• care
• respiratory health
• dwelling
• territorial dynamics