VSOP Dutch Patient Association for Rare and Genetic Diseases, Project Partner of EPTRI, Third Party Member of C4C and Project Partner of PedCRIN Soest The Netherlands
Kim Karsenberg
VSOP Dutch Patient Association for Rare and Genetic Diseases, Project Partner of EPTRI, Third Party Member of C4C and Project Partner of PedCRIN Soest The Netherlands
Johanna H. van derLee
Knowledge Institute of the Dutch Association of Medical Specialists Utrecht The Netherlands
Saskia N. deWildt
Intensive Care and Department of Pediatric Surgery Erasmus MC‐Sophia Children's Hospital Rotterdam The Netherlands