Clinical Epidemiology (Oct 2016)
The Danish Lung Cancer Registry
Abstract
Erik Jakobsen,1,2 Torben Riis Rasmussen3 1Department of Thoracic Surgery, Odense University Hospital, 2Odense Patient data Exploratory Network (OPEN), Institute of Clinical Research, University of Southern Denmark, Odense, 3Department of Respiratory Diseases and Allergy, Aarhus University Hospital, Aarhus, Denmark Aim of database: The Danish Lung Cancer Registry (DLCR) was established by the Danish Lung Cancer Group. The primary and first goal of the DLCR was to improve survival and the overall clinical management of Danish lung cancer patients. Study population: All Danish primary lung cancer patients since 2000 are included into the registry and the database today contains information on more than 50,000 cases of lung cancer. Main variables: The database contains information on patient characteristics such as age, sex, diagnostic procedures, histology, tumor stage, lung function, performance, comorbidities, type of surgery, and/or oncological treatment and complications. Since November 2013, DLCR data on Patient -Reported Outcome Measures is also included. Descriptive data: Results are primarily reported as quality indicators, which are published online monthly, and in an annual report where the results are commented for local, regional, and national audits. Indicator results are supported by descriptive reports with details on diagnostics and treatment. Conclusion: DLCR has since its creation been used to improve the quality of treatment of lung cancer in Denmark and it is increasingly used as a source for research regarding lung cancer in Denmark and in comparisons with other countries. Keywords: lung cancer, histology, tumor stage, lung function, performance, comorbidities, diagnostic procedures, type of surgery, oncological treatment, treatment complications
