Zhongguo cuzhong zazhi (Jan 2024)

肌萎缩侧索硬化医疗质量控制指标 Medical Quality Control Indicators for Amyotrophic Lateral Sclerosis

  • The Motor Neuron Disease Working Group of National Center for Healthcare Quality Management in Neurological Diseases

DOI
https://doi.org/10.3969/j.issn.1673-5765.2024.01.010
Journal volume & issue
Vol. 19, no. 1
pp. 69 – 75

Abstract

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国家神经系统疾病医疗质量控制中心于2022年设立了运动神经元病(motor neuron disease,MND)质控专病组,启动了肌萎缩侧索硬化(amyotrophic lateral sclerosis,ALS)/MND医疗质量控制体系建设。通过系统调研循证医学证据和国内外指南,MND质控专病组利用德尔菲法制定了ALS医疗质量控制指标体系,从统一诊断标准,建立患者全面管理概念,规范治疗方案等方面系统完善ALS的住院诊疗质量控制过程。该ALS医疗质量控制指标体系共15个指标,将为我国ALS医疗质量改进的实施提供首套可供监测的量化工具。通过对该指标体系的持续监测,可进行医疗质量的系统比较。借助这些指标系统开展工作,可提高医护人员对ALS的认识并规范临床医疗行为,从而促进中国MND医疗规范和持续质量改进体系的完善与发展。 Abstract: In 2022, the National Center for Healthcare Quality Management in Neurological Diseases set up the Motor Neuron Disease (MND) Working Group and started the construction of medical quality control system for amyotrophic lateral sclerosis (ALS) /MND. Through systematic investigation of evidence-based medicine evidence and domestic and foreign guidelines, the working group formulated the ALS medical quality control indicator system by using Delphi method, and systematically improved the quality control process of ALS in patient diagnosis and treatment from the aspects of unifying diagnostic criteria, establishing the concept of comprehensive management and standardizing treatment plans. The system includes 15 indicators, which will provide the first set of quantitative tools for monitoring the implementation of medical quality improvement of ALS in China. Through the continuous monitoring of this indicators system, the systematic comparison of treatment quality control could be carried out. With the help of this quality control system, medical staff can improve their understanding of ALS, and clinical medical behaviors can be standardized, thus establishing medical standards and continuous quality improvement system for MND in China.

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