JMIR Dermatology (Dec 2024)

Dermatologic Data From the Global Burden of Disease Study 2019 and the PatientsLikeMe Online Support Community: Comparative Analysis

  • Mindy D Szeto,
  • Lina Alhanshali,
  • Chandler W Rundle,
  • Madeline Adelman,
  • Michelle Hook Sobotka,
  • Emily Woolhiser,
  • Jieying Wu,
  • Colby L Presley,
  • Jalal Maghfour,
  • John Meisenheimer,
  • Jaclyn B Anderson,
  • Robert P Dellavalle

DOI
https://doi.org/10.2196/50449
Journal volume & issue
Vol. 7
pp. e50449 – e50449

Abstract

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AbstractThe Global Burden of Disease (GBD) study aims to characterize the worldwide prevalence and morbidity of major diseases, while PatientsLikeMe (PLM) is an online community providing patient-generated insights into lived experiences; for dermatologic conditions, quantitative comparisons of GBD and PLM data revealed expected demographic differences but also notable correlations, highlighting their potential as complementary data sources elucidating unmet patient needs and priorities.