BMJ Global Health (May 2020)
How to prevent and address safeguarding concerns in global health research programmes: practice, process and positionality in marginalised spaces
- Helen Elsey,
- Alastair H Leyland,
- Linsay Gray,
- Laura Dean,
- Rachel Tolhurst,
- Nadia Farnaz,
- Bachera Aktar,
- Abdul Awal,
- Kate Hawkins,
- Haja Wurie,
- Wafa Alam,
- Samiha Ali,
- Margaret Bayoh,
- Ivy Chumo,
- Yirah Contay,
- Abu Conteh,
- Skye Dobson,
- Jerker Edstrom,
- Jaideep Gupte,
- Beth Hollihead,
- Kunhi Lakshmi Josyula,
- Caroline Kabaria,
- Robinson Karuga,
- Joseph Kimani,
- Dolf te Lintelo,
- Bintu Mansaray,
- Joseph MacCarthy,
- Hayley MacGregor,
- Blessing Mberu,
- Nelly Muturi,
- Linet Okoth,
- Lilian Otiso,
- Kim Ozano,
- Ateeb Parray,
- Penny Phillips-Howard,
- Vinodkumar Rao,
- Sabina Rashid,
- Joanna Raven,
- Francis Refell,
- Samuel Saidu,
- Shafinaz Sobhan,
- Prasanna Subramanya Saligram,
- Samira Sesay,
- Sally Theobald,
- Phil Tubb,
- Linda Waldman,
- Jane Wariutu,
- Lana Whittaker
Affiliations
- Helen Elsey
- Health Sciences, University of York, York, UK
- Alastair H Leyland
- University of Glasgow, Glasgow, Glasgow, UK
- Linsay Gray
- MRC/CSO Social and Public Health Sciences Unit, Glasgow, UK
- Laura Dean
- International Public Health, Liverpool School of Tropical Medicine, Pembroke Place Liverpool L3 5QA, UK
- Rachel Tolhurst
- International Public Health, Liverpool School of Tropical Medicine, Liverpool, UK
- Nadia Farnaz
- BRAC University James P Grant School of Public Health, Dhaka, Dhaka District, Bangladesh
- Bachera Aktar
- James P Grant School of Public Health, BRAC University, Dhaka, Bangladesh
- Abdul Awal
- BRAC University James P Grant School of Public Health, Dhaka, Bangladesh
- Kate Hawkins
- Pamoja Communications, Brighton, UK
- Haja Wurie
- College of Medicine and Allied Health Sciences, University of Sierra Leone, Freetown, Sierra Leone
- Wafa Alam
- BRAC University James P Grant School of Public Health, Dhaka, Bangladesh
- Samiha Ali
- BRAC University James P Grant School of Public Health, Dhaka, Dhaka District, Bangladesh
- Margaret Bayoh
- Federation of Urban and Rural Poor, Freetown, Sierra Leone
- Ivy Chumo
- African Population and Health Research Center, Nairobi, Kenya
- Yirah Contay
- Federation of Urban and Rural Poor, Freetown, Sierra Leone
- Abu Conteh
- senior research officer in urban health
- Skye Dobson
- Slum Dwellers International, Cape Town, South Africa
- Jerker Edstrom
- Institute of Development Studies, Brighton, Brighton and Hove, UK
- Jaideep Gupte
- Institute of Development Studies, Brighton, Brighton and Hove, UK
- Beth Hollihead
- Liverpool School of Tropical Medicine, Liverpool, Liverpool, UK
- Kunhi Lakshmi Josyula
- The George Institute for Global Health, New Delhi, India
- Caroline Kabaria
- African Population and Health Research Center, Nairobi, Kenya
- Robinson Karuga
- Department of Research and Strategic Information, LVCT Health, Nairobi, Kenya
- Joseph Kimani
- Slum and Shack Dwellers International Kenya, Nairobi, Kenya
- Dolf te Lintelo
- Institute of Development Studies, Brighton, Brighton and Hove, UK
- Bintu Mansaray
- College of Medicine and Allied Health Sciences, University of Sierra Leone, Freetown, Western Area, Sierra Leone
- Joseph MacCarthy
- Sierra Leone Urban Research Centre, Njala University, Freetown, Sierra Leone
- Hayley MacGregor
- Health and Nutrition Research Cluster, Institute of Development Studies, Falmer, UK
- Blessing Mberu
- African Population and Health Research Center, Nairobi, Kenya
- Nelly Muturi
- LVCT, Nairobi, Kenya
- Linet Okoth
- 1 LVCT Health, Nairobi, Kenya
- Lilian Otiso
- 1 LVCT Health, Nairobi, Kenya
- Kim Ozano
- 5 Department of International Public Health, Liverpool School of Tropical Medicine, Liverpool, Liverpool, UK
- Ateeb Parray
- BRAC University James P Grant School of Public Health, Dhaka, Dhaka District, Bangladesh
- Penny Phillips-Howard
- Liverpool School of Tropical Medicine, Liverpool, Liverpool, UK
- Vinodkumar Rao
- The Society for Promotion of Area Resource Center, Mumbai, India
- Sabina Rashid
- BRAC University James P Grant School of Public Health, Dhaka, Dhaka District, Bangladesh
- Joanna Raven
- Department of International Public Health, Liverpool School of Tropical Medicine, Liverpool, Liverpool, UK
- Francis Refell
- CODOHSAPA, Freetown, Sierra Leone
- Samuel Saidu
- COMAHS, Freetown, Western Area, Sierra Leone
- Shafinaz Sobhan
- BRAC University James P Grant School of Public Health, Dhaka, Dhaka District, Bangladesh
- Prasanna Subramanya Saligram
- The George Institute for Global Health, New Delhi, India
- Samira Sesay
- College of Medicine and Allied Health Sciences, University of Sierra Leone, Freetown, Western Area, Sierra Leone
- Sally Theobald
- 2 Department of International Public Health, Liverpool School of Tropical Medicine, Liverpool, UK
- Phil Tubb
- 3 Department of Clinical Sciences, Liverpool School of Tropical Medicine, Liverpool, UK
- Linda Waldman
- Institute of Development Studies, Brighton, Brighton and Hove, UK
- Jane Wariutu
- Slum and Shack Dwellers International Kenya, Nairobi, Kenya
- Lana Whittaker
- Liverpool School of Tropical Medicine, Liverpool, Liverpool, UK
- DOI
- https://doi.org/10.1136/bmjgh-2019-002253
- Journal volume & issue
-
Vol. 5,
no. 5
Abstract
Safeguarding is rapidly rising up the international development agenda, yet literature on safeguarding in related research is limited. This paper shares processes and practice relating to safeguarding within an international research consortium (the ARISE hub, known as ARISE). ARISE aims to enhance accountability and improve the health and well-being of marginalised people living and working in informal urban spaces in low-income and middle-income countries (Bangladesh, India, Kenya and Sierra Leone). Our manuscript is divided into three key sections. We start by discussing the importance of safeguarding in global health research and consider how thinking about vulnerability as a relational concept (shaped by unequal power relations and structural violence) can help locate fluid and context specific safeguarding risks within broader social systems. We then discuss the different steps undertaken in ARISE to develop a shared approach to safeguarding: sharing institutional guidelines and practice; facilitating a participatory process to agree a working definition of safeguarding and joint understandings of vulnerabilities, risks and mitigation strategies and share experiences; developing action plans for safeguarding. This is followed by reflection on our key learnings including how safeguarding, ethics and health and safety concerns overlap; the challenges of referral and support for safeguarding concerns within frequently underserved informal urban spaces; and the importance of reflective practice and critical thinking about power, judgement and positionality and the ownership of the global narrative surrounding safeguarding. We finish by situating our learning within debates on decolonising science and argue for the importance of an iterative, ongoing learning journey that is critical, reflective and inclusive of vulnerable people.