Journal of Clinical and Translational Science (Jan 2024)

Community scientist program provides bi-directional communication and co-learning between researchers and community members

  • Jessica Alvarado,
  • Larkin L. Strong,
  • Birnur Buzcu-Guven,
  • Leonetta B. Thompson,
  • Erica Cantu,
  • Chelsea C. Carrier,
  • Chiamaka D. Chukwu,
  • Cassandra L. Harris,
  • Luz K. Melendez,
  • Crystal L. Roberson,
  • Angela M. Ross,
  • Sophia C. Russell,
  • Pablo Sanchez,
  • Amirali Tahanan,
  • Blair C. Zdenek,
  • Belinda M. Reininger,
  • Lorna H. McNeill

DOI
https://doi.org/10.1017/cts.2023.703
Journal volume & issue
Vol. 8

Abstract

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Community involvement in research is key to translating science into practice, and new approaches to engaging community members in research design and implementation are needed. The Community Scientist Program, established at the MD Anderson Cancer Center in Houston in 2018 and expanded to two other Texas institutions in 2021, provides researchers with rapid feedback from community members on study feasibility and design, cultural appropriateness, participant recruitment, and research implementation. This paper aims to describe the Community Scientist Program and assess Community Scientists' and researchers' satisfaction with the program. We present the analysis of the data collected from 116 Community Scientists and 64 researchers who attended 100 feedback sessions, across three regions of Texas including Northeast Texas, Houston, and Rio Grande Valley between June 2018 and December 2022. Community Scientists stated that the feedback sessions increased their knowledge and changed their perception of research. All researchers (100%) were satisfied with the feedback and reported that it influenced their current and future research methods. Our evaluation demonstrates that the key features of the Community Scientist Program such as follow-up evaluations, effective bi-directional communication, and fair compensation transform how research is conducted and contribute to reducing health disparities.

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