IJCM_207A: Deaf blindness in India: Prevention and Long-Term Challenges

Abstract

Background: Deaf-blindness is a disability encompassing varying degrees of hearing impairment and low vision together. Congenital deafblindness is when its onset under 2 years age. Objectives: In India, there are no organized data for deafblindness and estimates indicate there could be more than 500,000 deafblind people. Voluntary organizations provide unwavering support to deafblind children and adults alike. Methodology: (i) early identification (ii) prompt referral for community rehabilitation (iii) early assessment and intervention by identification of high- risk children (iv) individualized education to monitor progress (v) continued review and planning for further education and employment in adulthood. Results: Primary prevention by (i) immunization against Rubella to prevent Congenital Rubella syndrome; (ii) education of all women of childbearing age about healthy habits and avoiding alcohol and drug use; and (iii) accessible antenatal health care for all pregnant women. Conclusion: Strategists and politicians need joint up thinking with perseverance and a strong will to tackle this condition with long term sustained input. They are urged to consider deafblindness as a distinct category in the national census and survey counts.

Keywords

• deafblindness
• dual sensory impairment
• prevention
• developmental delay
• disability