“I’m not alone”: a qualitative report of experiences among parents of children with eating disorders attending virtual parent-led peer support groups

Abstract

Plain English summary The treatment of children who have eating disorders (EDs) requires extensive involvement from parents. Parents have voiced a need for greater support, and one way to meet this need is through peer support. Using end-of-study interviews, this study qualitatively described the experiences of parents of children who have EDs who participated in virtual parent-led peer support groups (vPLPSGs) for 6 months. Our findings suggest that vPLPSGs are beneficial for parents of children who have EDs. Participants had positive perceptions of the group organization and structure, the parent facilitators, and other parent attendees, and valued the support and educational resources received in the group. Parents noted it was particularly helpful to be able to speak with other parents who understood their experiences, which helped them feel less alone in their difficulties with their child. Parents also noted an improvement in their relationship with their child who has an ED, and believed that these groups should be readily available and accessible. Suggestions for improvement included dividing groups based on children’s ED diagnosis, duration of illness, and geographical location. Further expansion and study of these groups is warranted, as they appear to be a valuable support for families affected by EDs.

Keywords

• Eating disorders
• Peer support
• Parents
• Caregivers
• Children
• Adolescents