Cross-Cultural Validation of Health and Quality of Life Measures for Children in Hong Kong

Abstract

Objective. The Pediatric Quality of Life Inventory (PedsQL™) 4.0 is a health-related quality of life (HRQOL) measure designed for clinical practice and research, health policy evaluation, and general population surveys. There is a dearth of instruments measuring quality of life in children which are available in Chinese and validated for Chinese populations. Therefore, this study attempted to establish the Hong Kong populations’ norms for the Chinese version of PedsQL™ and examined the psychometric properties of the measure for this population. Methods. Sixty-nine children (aged 7 to 12 years) and their parents completed the child self-report and the parent proxy report, respectively, of the PedsQL™ 4.0 Generic Module. To evaluate construct validity, a group comparison of children with special educational needs (SEN) (n=21) and those with typical development (TD) (n=48) was conducted. Differences based on age group and gender and parent–child agreement on the perception of the child’s HRQOL were also examined. Results. Children with SEN had a lower quality of life perception than those with TD in the physical, social, and schooling domains. No significant differences in emotional health were found between the two groups. The differences between the children with SEN and with TD varied based on age group and gender. The differences between the parents’ and children’s perceptions of the children’s HRQOL were insignificant in this sample. Conclusion. Norms for the Chinese version of the PedsQL™ 4.0 Generic Module for the Hong Kong population were established in the study, and both the child self-report and parent proxy report were found to be reliable and valid for this population.