Frontiers in Oncology (Jun 2024)

Scope of services provided to childhood cancer patients by the Brazilian Pediatric Palliative Care Network

  • Esther Angélica Luiz Ferreira,
  • Esther Angélica Luiz Ferreira,
  • Cristina Ortiz Sobrinho Valete,
  • Cristina Ortiz Sobrinho Valete,
  • Silvia Maria de Macedo Barbosa,
  • Silvia Maria de Macedo Barbosa,
  • Graziela de Araujo Costa,
  • Graziela de Araujo Costa,
  • Poliana Cristina Carmona Molinari,
  • Poliana Cristina Carmona Molinari,
  • Ana Cristina Pugliese de Castro,
  • Ana Cristina Pugliese de Castro,
  • Simone Brasil de Oliveira Iglesias,
  • Simone Brasil de Oliveira Iglesias,
  • Maycon Rodrigo Sarracini,
  • Maycon Rodrigo Sarracini,
  • Rodrigo Bezerra de Menezes Reiff,
  • Rodrigo Bezerra de Menezes Reiff,
  • Rodrigo Bezerra de Menezes Reiff,
  • Cristina Helena Bruno,
  • Cristina Helena Bruno,
  • Maria Sagrario Gómez-Cantarino,
  • Maria Sagrario Gómez-Cantarino,
  • Ana María Ullán

DOI
https://doi.org/10.3389/fonc.2024.1376631
Journal volume & issue
Vol. 14

Abstract

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IntroductionBrazil is a developing and an Upper Middle Income, categorized by the World Bank. Therefore, it is a country that needs a special vision for children with oncological diseases who require Pediatric Palliative Care. This study aimed to understand the specificities of services that provide oncology services in comparison to those that do not provide oncological care.MethodsThis is a descriptive, cross-sectional, and online survey study. A questionnaire was created by a multidisciplinary group of leaders from the Brazilian Pediatric Palliative Care Network and then the survey was distributed using a snowball strategy.ResultsOf the 90 services that answered the questionnaire, 40 (44.4%) attended oncologic patients. The Southeast represented most of the services (57.57%), followed by the Northeast, with 18.89% (17 services), the South with 12.22% (11 services), and the Center West with 8.89% (8 services). No differences were observed in access to opioid prescriptions between the services. It was observed that those services that attended oncologic patients had a tendency to dedicate more time to Pediatric Palliative Care.DiscussionThe distribution of services that cover oncology and those that do not, are similar in the different regions of Brazil. In Brazil, there are difficulties in accessing opioids in pediatrics: access to opioid prescriptions without differences revealed that even pediatric oncologists might have difficulty with this prescription, and this should improve. It is concluded that education in Pediatric Palliative Care is the key to improvements in the area.

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