Long-term follow-up of epidermolysis bullosa in real practice shows stability of the Epidermolysis Bullosa Disease Activity and Scarring Index and improvement with some off-label therapies

• Genevieve Ho, BMed/MB, MMed,
• Matthew Gibson, MBBS, MMed, DCH,
• Nooshafarin Kazemikhoo, MD, PhD,
• Dedee F. Murrell, MA, BMBCh, MD

Affiliations

Genevieve Ho, BMed/MB, MMed

Department of Dermatology, St George Hospital, Sydney, Australia

Matthew Gibson, MBBS, MMed, DCH

Department of Dermatology, St George Hospital, Sydney, Australia; University of New South Wales, Faculty of Medicine and Health, Sydney, Australia

Nooshafarin Kazemikhoo, MD, PhD

Department of Dermatology, St George Hospital, Sydney, Australia; University of New South Wales, Faculty of Medicine and Health, Sydney, Australia

Dedee F. Murrell, MA, BMBCh, MD

Department of Dermatology, St George Hospital, Sydney, Australia; University of New South Wales, Faculty of Medicine and Health, Sydney, Australia; The George Institute for Global Health, Sydney, Australia