Narrative medicine educational project to improve the care of patients with chronic obstructive pulmonary disease

ERJ Open Research. 2018;4(2) DOI 10.1183/23120541.00155-2017

 

Journal Homepage

Journal Title: ERJ Open Research

ISSN: 2312-0541 (Online)

Publisher: European Respiratory Society

Society/Institution: European Respiratory Society

LCC Subject Category: Medicine

Country of publisher: United Kingdom

Language of fulltext: English

Full-text formats available: PDF, HTML

 

AUTHORS


Antonietta Cappuccio ( Fondazione ISTUD, Milan, Italy )

Alessandro Sanduzzi Zamparelli ( Dept of Clinical Medicine and Surgery, Section of Respiratory Disease, University Federico II, Naples, Italy )

Massimo Verga ( Antismoking Centre, ASST Santi Paolo e Carlo, Milan, Italy )

Stefano Nardini ( Pulmonary and TB Unit, General Hospital, Vittorio Veneto, Italy )

Alessandro Policreti ( Medical Dept, Novartis Farma, Origgio, Italy )

Pasquale Alberto Porpiglia ( Medical Dept, Novartis Farma, Origgio, Italy )

Silvia Napolitano ( Fondazione ISTUD, Milan, Italy )

Maria Giulia Marini ( Fondazione ISTUD, Milan, Italy )

Anna Annunziata

Sabrina Arondi

Sara Balestracci

Elena Bargagli

Angelo Bastianelli

Michele Battilana

Maria Grazia Boi

Bassal Boulos

Luisa Brussino

Guglielmo Bussoli

Biagio Campana

Silvia Capato

Chiara Carraro

Francesco Carrozzi

Maria Antonietta Ceccon

Franco Chiaravalloti

Mongiardi Christian

Ida Ciamarra

Antonello Colangeli

Claudia Coli

Paola Contini

Eugenio Cosentino

Nicola Costanzo

Emilio De Angelis

Francesca De Filippis

Nicola De Rosa

Ginevra Del Giudice

Felice Di Perna

Bledar Elezi

Varzaneh ShoKoofoe Eslami

Giorgio Ferraro

Maria Concetta Giofrè

Francesca Giovannelli

Simona Guerra

Giuseppe La Fauci

Claudia Madaschi

Ennio Mantellini

Silvia Marani

Rita Marchi

Ali Asghar Masoudì

Claudio Mastruzzo

Emilio Melica

Filomena Minicozzi

Aldo Miraglia

Antonio Molino

Maria Adelaide Moschella

Massimiliano Napolitano

Patrizia Palmulli

Alberto Pavan

Andrea Pelucchi

Antonio Perciaccante

Vincenzo Pezzella

Vittorio Pietrangeli

Biagio Polla

Maurizio Rizzi

Javier Rosada

Sandro Rossi

Maurizio Russo

Giancarlo Santanocto

Giorgio Scarmagnan

Fabio Scotto

Ernesto Serpe

Manuela Serpilli

Maria Serra

Maria Serravillo

Danilo Taccaliti

Chiara Ticozzi

Aniello Tinto

Nello Tobia

Victoria Tourchenko

Andrea Turati

Paolo Vivoli

Erika Zanardi

EDITORIAL INFORMATION

Blind peer review

Editorial Board

Instructions for authors

Time From Submission to Publication: 8 weeks

 

Abstract | Full Text

Chronic obstructive pulmonary disease (COPD) is characterised by a progressive loss of pulmonary function. Often patients do not adhere to inhaled therapies and this leads clinicians to switch treatments in order to improve control of the symptoms. Narrative medicine is a useful approach that helps healthcare professionals to think over the doctor–patient relationship and how patients live with their disease. The aim of this training project was to teach pulmonologists the basics of narrative medicine: to carefully listen to patients and to practice reflective writing in their relationship with them. Training on narrative medicine and parallel charts was provided through a webinar and a weekly newsletter. Across 362 narratives, written by 74 Italian pulmonologists, 92% of patients had activity limitations at their first visit. The main factor influencing the effectiveness and adherence to therapy was a positive doctor–patient relationship; indeed, if such relationship is difficult, only 21% of patients are able to resume all their activities. After learning the narrative approach, clinicians became aware of the need to spend more time listening to patients, to reflect through writing and to understand more deeply the motivations that lead people towards adherence to new therapies.