Healthcare (May 2022)

Ethical Decision Making in Iot Data Driven Research: A Case Study of a Large-Scale Pilot

  • Sofia Segkouli,
  • Giuseppe Fico,
  • Cecilia Vera-Muñoz,
  • Mario Lecumberri,
  • Antonis Voulgaridis,
  • Andreas Triantafyllidis,
  • Pilar Sala,
  • Stefano Nunziata,
  • Nadia Campanini,
  • Enrico Montanari,
  • Suzanne Morton,
  • Alexandre Duclos,
  • Francesca Cocchi,
  • Mario Diaz Nava,
  • Trinidad de Lorenzo,
  • Eleni Chalkia,
  • Matina Loukea,
  • Juan Bautista Montalvá Colomer,
  • George E. Dafoulas,
  • Sergio Guillén,
  • María Teresa Arredondo Waldmeyer,
  • Konstantinos Votis

DOI
https://doi.org/10.3390/healthcare10050957
Journal volume & issue
Vol. 10, no. 5
p. 957

Abstract

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IoT technologies generate intelligence and connectivity and develop knowledge to be used in the decision-making process. However, research that uses big data through global interconnected infrastructures, such as the ‘Internet of Things’ (IoT) for Active and Healthy Ageing (AHA), is fraught with several ethical concerns. A large-scale application of IoT operating in diverse piloting contexts and case studies needs to be orchestrated by a robust framework to guide ethical and sustainable decision making in respect to data management of AHA and IoT based solutions. The main objective of the current article is to present the successful completion of a collaborative multiscale research work, which addressed the complicated exercise of ethical decision making in IoT smart ecosystems for older adults. Our results reveal that among the strong enablers of the proposed ethical decision support model were the participatory and deliberative procedures complemented by a set of regulatory and non-regulatory tools to operationalize core ethical values such as transparency, trust, and fairness in real care settings for older adults and their caregivers.

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