International Journal of Population Data Science (Sep 2022)

Laying the Foundation for Real-World Evidence Studies of Psoriatic Disease in Newfoundland and Labrador

  • Winifred Badaiki,
  • Evelyn Pyper,
  • Kendra Lester,
  • Janelle Skeard,
  • Michelle Penney,
  • Janey Shin,
  • Brenda Fisher,
  • Huong Hew,
  • Susanne Gulliver,
  • Wayne Gulliver,
  • Proton Rahman

DOI
https://doi.org/10.23889/ijpds.v7i1.1690
Journal volume & issue
Vol. 7, no. 1

Abstract

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The Janssen and Newfoundland and Labrador Health Innovation Partnership (JANL-HIP) was established to carry out Real-World Evidence (RWE) projects to generate evidence about disease pathways, healthcare delivery, the effects of clinical interventions. Doing so will support and influence clinical decision-making in Newfoundland and Labrador (NL). This case study describes the foundational elements necessary for a~real-world evidence~generation project in NL and may provide learning for the effective execution of real-world studies in other jurisdictions. It uses an ongoing project in psoriatic disease in NL to illustrate the partnership and the benefits of RWE studies. Ultimately, the JANL-HIP RWE project aims to inform decisions that will drive improvements in health outcomes, system delivery, and policy mutually beneficial to health ecosystem stakeholders.

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