Revista Gaúcha de Enfermagem (Dec 2021)

Child/adolescent caring for the disabled sibling in the family world

  • Vera Lucia Freitag,
  • Maria da Graça Corso da Motta,
  • Viviane Marten Milbrath,
  • Ruth Irmgard Bärtschi Gabatz,
  • Jéssica Stragliotto Bazzan

DOI
https://doi.org/10.1590/1983-1447.2021.20200153
Journal volume & issue
Vol. 42

Abstract

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ABSTRACT Objective: To understand the meaning for the child/adolescent of participating in the care of the disabled sibling. Method: Research in the light of the Heideggerian phenomenological approach, carried out in the northern region of Rio Grande do Sul - Brazil. Twenty children/adolescents who lived with their disabled sibling participated. The information was collected through phenomenological interviews, interpreted in the light of hermeneutics from Paul Ricoeur. Results: The child/adolescent helps the family in caring for the disabled sibling, in feeding, bathing, dressing, among other activities, at sometimes there is excessive responsibility of the child/adolescent for the care of the sibling. Final considerations: The inclusion of the child/adolescent who lives with a disabled sibling and their families in the planning and implementation of health care activities is essential. It stands out as a research contribution to the qualification of the practice of health professionals, especially the nurse in the scope of care for the child/adolescent who experience this phenomenon.

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