JMIR Formative Research (Sep 2020)

Optimizing Health Information Technologies for Symptom Management in Cancer Patients and Survivors: Usability Evaluation

  • Lattie, Emily G,
  • Bass, Michael,
  • Garcia, Sofia F,
  • Phillips, Siobhan M,
  • Moreno, Patricia I,
  • Flores, Ann Marie,
  • Smith, JD,
  • Scholtens, Denise,
  • Barnard, Cynthia,
  • Penedo, Frank J,
  • Cella, David,
  • Yanez, Betina

DOI
https://doi.org/10.2196/18412
Journal volume & issue
Vol. 4, no. 9
p. e18412

Abstract

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BackgroundUnmanaged cancer symptoms and treatment-related side effects can compromise long-term clinical outcomes and health-related quality of life. Health information technologies such as web-based platforms offer the possibility to supplement existing care and optimize symptom management. ObjectiveThis paper describes the development and usability of a web-based symptom management platform for cancer patients and survivors that will be implemented within a large health system. MethodsA web-based symptom management platform was designed and evaluated via one-on-one usability testing sessions. The System Usability Scale (SUS), After Scenario Questionnaire (ASQ), and qualitative analysis of semistructured interviews were used to assess program usability. ResultsTen cancer survivors and five cancer center staff members participated in usability testing sessions. The mean score on the SUS was 86.6 (SD 14.0), indicating above average usability. The mean score on the ASQ was 2.5 (SD 2.1), indicating relatively high satisfaction with the usability of the program. Qualitative analyses identified valued features of the program and recommendations for further improvements. ConclusionsCancer survivors and oncology care providers reported high levels of acceptability and usability in the initial development of a web-based symptom management platform for cancer survivors. Future work will test the effectiveness of this web-based platform.