Journal of Patient-Reported Outcomes (Nov 2024)

How patient-reported outcomes and experience measures (PROMs and PREMs) are implemented in healthcare professional and patient organizations? An environmental scan

  • Véronique Lowry,
  • Vanessa Tremblay-Vaillancourt,
  • Priscilla Beaupré,
  • Marie-Dominique Poirier,
  • Marie-Ève Perron,
  • Jessica Bernier,
  • Anaëlle Morin,
  • Caroline Cormier,
  • Jeannie Haggerty,
  • Sara Ahmed,
  • Magaly Brodeur,
  • Geneviève David,
  • Sylvie Lambert,
  • Maude Laberge,
  • Diana Zidarov,
  • Regina Visca,
  • Thomas G. Poder,
  • Hervé Tchala Vignon Zomahoun,
  • Maxime Sasseville,
  • Marie-Eve Poitras

DOI
https://doi.org/10.1186/s41687-024-00795-9
Journal volume & issue
Vol. 8, no. 1
pp. 1 – 12

Abstract

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Abstract Background Patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) are becoming essential parts of a learning health system, and using these measures is a promising approach for value-based healthcare. However, evidence regarding healthcare professional and patient organizations’ knowledge, use and perception of PROMs and PREMs is lacking. Objectives The objectives of the study were to: 1- Describe the current knowledge and use of PROMs and PREMs by healthcare professional and patient organizations, 2- Describe the determinants of PROMs and PREMs implementation according to healthcare professional and patient organizations. Methods We conducted an environmental scan using semi-structured interviews with representatives from healthcare professional and patient organizations. Interviews were recorded and live coded based on the Franklin framework. We used inductive and deductive thematic analysis to extract information about the main themes addressed during the interview (awareness of PROMs and PREMs, examples of implementation and use of PROMs and PREMs, tools used, vision for future implementation, barriers and facilitators to implementation and the best way to collect PROMs and PREMs data). Results 63% of healthcare professional organizations (n = 19) and 41% of patient organizations (n = 9) that were contacted agreed to have a representative interviewed. The representatives from both the healthcare professional and patient organizations acknowledged the importance of assessing patients’ experience and outcomes. However, they considered the implementation of PROMs and PREMs tools to be scarce within their organizations, in clinical practice and in the education system. Patient organizations were worried that overuse of PROMs and PREMs could lead to depersonalization of practice. Barriers to implementing PROMs and PREMs included lack of awareness of tools, resistance to change and lack of motivation to complete or explain the questionnaire. Barriers also included factors such as lack of financial, technological and human resources and issues with integration of data and inconsistency of digital platforms. Conclusions This environmental scan revealed a lack of awareness of tools by healthcare professional and patient organizations’ representatives and limited implementation. Adequate training, technological integration, and demonstration of PROMs and PREMs benefits to foster broader adoption in clinical and organizational settings is dearly needed. Addressing these challenges is essential for enhancing value-based care.

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