EXTending availability of self-management structured EducatioN programmes for people with type 2 Diabetes in low-to-middle income countries (EXTEND)—a feasibility study in Mozambique and Malawi
David Beran,
Albertino Damasceno,
Jorge Correia,
Melanie J Davies,
Kamlesh Khunti,
Naomi Levitt,
Emer M Brady,
Amelia Crampin,
Hazel Namadingo,
Catherine Bamuya,
Sally Schreder,
Ghazala Waheed,
Cheryl Taylor,
Jayna Mistry,
Deirdre Harrington,
M Hadjiconstantinou,
Ana Magaia,
Anne Rodgers,
Leopoldo Simango,
Bernie Stribling
Affiliations
David Beran
Geneva University Hospitals, Geneva, Switzerland
Albertino Damasceno
Faculty of Medicine, Eduardo Mondlane University, Maputo, Mozambique
Jorge Correia
Unit of Patient Education, Division of Endocrinology,Diabetology, Nutrition and Patient Education, WHO Collaborating Center, Department of Medicine, University of Geneva and Geneva University Hospitals, Geneva, Switzerland
Melanie J Davies
1 Leicester Diabetes Centre, University Hospitals of Leicester NHS Trust, Leicester, UK
Kamlesh Khunti
Leicester Real World Evidence Unit, Diabetes Research Centre, University of Leicester, Leicester, UK
Naomi Levitt
University of Cape Town, Rondebosch, Western Cape, South Africa
Emer M Brady
Department of Cardiovascular Sciences and NIHR Leicester Biomedical Research Centre, University of Leicester, Leicester, UK
Amelia Crampin
Malawi Epidemiology and Intervention Research Unit, Lilongwe, Malawi
Hazel Namadingo
Malawi Epidemiology and Intervention Research, Lilongwe, Malawi
Catherine Bamuya
Malawi Epidemiology and Intervention Research Unit, Lilongwe, Malawi
Sally Schreder
Leicester Diabetes Centre, University Hospitals of Leicester NHS Trust, Leicester, UK
Ghazala Waheed
Leicester Clinical Trials Unit, University of Leicester, Leicester, UK
Cheryl Taylor
Leicester Diabetes Centre, University Hospitals of Leicester NHS Trust, Leicester, UK
Jayna Mistry
Leicester Diabetes Centre, University Hospitals of Leicester NHS Trust, Leicester, UK
Deirdre Harrington
Psychological Sciences and Health, University of Strathclyde, Glasgow, UK
M Hadjiconstantinou
Diabetes Research Centre, College of Life Sciences, University of Leicester, Leicester, UK
Ana Magaia
Faculty of Medicine, Eduardo Mondlane University, Maputo, Mozambique
Anne Rodgers
Leicester Diabetes Centre, University Hospitals of Leicester NHS Trust, Leicester, UK
Leopoldo Simango
Mozambican Diabetes Association (AMODIA), Maputo, Mozambique
Bernie Stribling
Leicester Diabetes Centre, University Hospitals of Leicester NHS Trust, Leicester, UK
Background Globally, there are estimated 425 million people with type 2 diabetes (T2D) with 80% from low-middle income countries (LMIC). Diabetes self-management education (DSME) programmes are a vital and core component of the treatment pathway for T2D. Despite LMIC being disproportionally affected by T2D, there are no DSME available that meet international diabetes federation criterion.Methods The aims were to test the feasibility of delivering a proven effective and cost-effective approach used in a UK population in two urban settings in Malawi and Mozambique by; (1) developing a culturally, contextually and linguistically adapted DSME, the EXTending availability of self-management structured EducatioN programmes for people with type 2 Diabetes in low-to-middle income countries (EXTEND) programme; (2) using a mixed-method approach to evaluate the delivery of training and the EXTEND programme to patients with T2D.Results Twelve healthcare professionals were trained. Ninety-eight participants received the DSME. Retention was high (100% in Mozambique and 94% in Malawi). At 6 months HbA1c (−0.9%), cholesterol (−0.3 mmol/L), blood pressure (−5.9 mm Hg systolic and −6.1 mm Hg diastolic) improved in addition to indicators of well-being (problem areas in diabetes and self-efficacy in diabetes).Conclusion It is feasible to deliver and evaluate the effectiveness of a culturally, contextually and linguistically adapted EXTEND programme in two LMIC. The DSME was acceptable with positive biomedical and psychological outcomes but requires formal testing with cost-effectiveness. Challenges exist in scaling up such an approach in health systems that do not have resources to address the challenge of diabetes.