Treatment Satisfaction and Its Influencing Factors in Parkinson’s Disease: A Web-Based Survey of Patients and Physicians in Clinical Practice in Japan

Abstract

Objective. This study aimed to gain an understanding of patient and physician satisfaction with overall treatment and routine consultations for Parkinson’s disease in clinical practice. Methods. This observational, cross-sectional, web-based survey was conducted in Japan from February to March 2019. Eligible patients with Parkinson’s disease (N = 186) and physicians who treat patients with Parkinson’s disease (N = 331) were asked to evaluate their satisfaction with treatment, consultation, symptom control, and use of a symptom diary. Results. Patients had a mean age of 62.7 years, 54.8% were male, and most (75.8%) had Hoehn and Yahr stage ≥3 symptoms. Physicians were mostly male (93.1%) and had treated 52 patients with Parkinson’s disease in the last 6 months, and 34.1% were certified neurologists. There were significant gaps between patient and physician satisfaction with treatment and consultations. Patient and physician satisfaction with overall treatment was significantly lower for patients with Hoehn and Yahr stage ≥3 symptoms than stage 1-2 symptoms (patients: 53.9% vs. 71.1%; physicians: 43.2% vs. 69.7%, respectively). The proportion of patients who were satisfied with symptom control was lower than that of physicians (26.4% vs. 51.5%). Influencing factors for patient satisfaction with treatment were nonmotor symptoms (e.g., insomnia and depression). Satisfaction tended to be higher for patients and physicians when symptom diaries were used. Conclusion. Significant gaps in perceptions of treatment and consultation exist between patients and physicians in Parkinson’s disease. Physicians should participate in shared decision making with their patients and consider strategies for management of nonmotor symptoms and nonpharmacological therapies and encourage the use of symptom diaries.