Collaborating to improve quality of life in patients with primary immunodeficiencies: World Prrimary Immunodeficiency Week (WPIW) 2013

Abstract

World Primary Immunodeficiency Week (WPIW) 2013, is celebrated annually on 22-29 April. This year WPIW focuses on the need to test, diagnose and treat this primary immunodeficiency to promote its early detection and appropriate care. This year’s reflexions focuses on various regions of the world. The authors have taken stock of the situation in their respective areas of the world: Europe, Latin America, North Africa and Middle East, as well as Australia. Through a cross country analysis, it reflects on progress made to date to improve the life of patients with primary immunodeficiency diseases (PIDs) and the challenges that remain to address. In addition the authors address the need for continued international collaboration amongst all relevant actors to drive better access to early diagnosis and appropriate treatment and ultimately improve the life of patients with PIDs.

Keywords

• Inmunodeficiencias primarias
• pruebas de diagnóstico
• tratamiento apropiado
• calidad de vida