P339: Vosoritide therapy in patients with achondroplasia: Early experience and practical considerations for clinical practice

• Oliver Semler,
• Valérie Cormier-Daire,
• Ekkehart Lausch,
• Michael Bober,
• Ricki Carroll,
• Sérgio Sousa,
• David Deyle,
• Maha Faden,
• Gabriele Hartmann,
• Aaron Huser,
• Janet Legare,
• Klaus Mohnike,
• Tilman Rohrer,
• Frank Rutsch,
• Pamela Smith,
• Andre Travessa,
• Angela Verado,
• Klane White,
• William Wilcox,
• Julie Hoover-Fong

Affiliations

Oliver Semler

Faculty of Medicine and University Hospital Cologne, Center for Rare Diseases, University of Cologne, Cologne, Germany

Valérie Cormier-Daire

Centre of Reference for Constitutional Bone Diseases (MOC), Department of Clinical Genetics, Paris Centre University, INSERM, Imagine Institute, Necker-Enfants Malades Hospital, Paris, France

Ekkehart Lausch

Center for Pediatric and Adolescent Medicine, University Hospital Freiburg, Freiburg, Germany

Michael Bober

Nemours Skeletal Dysplasia Program, Nemours Children’s Hospital, Wilmington, DE

Ricki Carroll

Nemours Skeletal Dysplasia Program, Nemours Children’s Hospital, Wilmington, DE

Sérgio Sousa

Medical Genetics Unit, Hospital Pediátrico, Centro Hospitalar e Universitário de Coimbra; and University Clinic of Genetics, Faculty of Medicine, Universidade de Coimbra, Coimbra, Portugal

David Deyle

Department of Clinical Genomics, Mayo Clinic, Rochester, MN

Maha Faden

Medical Genetic Unit, Children's Hospital, King Saud Medical City, Riyadh, Saudi Arabia

Gabriele Hartmann

Vienna Bone and Growth Center, Department of Pediatrics and Adolescent Medicine, Medical University of Vienna, Austria

Aaron Huser

Paley Advanced Limb Lengthening Institute, West Palm Beach, FL

Janet Legare

Department of Pediatrics, University of Wisconsin, Madison, WI

Klaus Mohnike

Universitätskinderklinik, Otto-von-Guericke Universität, Magdeburg, Germany

Tilman Rohrer

Clinic for General Pediatrics and Neonatology, Universität des Saarlandes, Saarbrücken, Germany

Frank Rutsch

Münster University Children's Hospital, Münster, Germany

Pamela Smith

Division of Endocrinology, Phoenix Children's, Phoenix, AZ

Andre Travessa

Department of Medical Genetics, Hospital de Santa Maria, Centro Hospitalar Universitário Lisboa Norte, and Faculty of Medicine, University of Lisbon, Portugal

Angela Verado

Newark Beth Israel Medical Center, Newark, NJ

Klane White

Children’s Hospital Colorado, Aurora, CO

William Wilcox

Emory University School of Medicine, Atlanta, GA

Julie Hoover-Fong

McKusick-Nathans Department of Genetic Medicine, Johns Hopkins University, Baltimore, MD