Implementing patient-centred outcome measures in palliative care clinical practice for adults (IMPCOM): Protocol for an update systematic review of facilitators and barriers [version 2; peer review: 2 approved]
Farhad Shokraneh,
Richard Harding,
Irene Higginson,
Sarah Dixon,
Roberta Lovick,
Simon Etkind,
Ben Bowers,
Claudia Bausewein,
Fliss Murtagh,
Isla Kuhn,
Kathy Eagar,
Bárbara Antunes,
Stephen Barclay
Affiliations
Farhad Shokraneh
Palliative and End of Life Care Group in Cambridge (PELiCam), Department of Public Health and Primary Care, Primary Care Unit, The University of Cambridge, Cambridge, UK
Richard Harding
Department of Palliative Care and Cicely Saunders Institute, King's College London, London, UK
Irene Higginson
Department of Palliative Care and Cicely Saunders Institute, King's College London, London, UK
Sarah Dixon
Palliative and End of Life Care Group in Cambridge (PELiCam), Department of Public Health and Primary Care, Primary Care Unit, The University of Cambridge, Cambridge, UK
Roberta Lovick
Palliative and End of Life Care Group in Cambridge (PELiCam), Department of Public Health and Primary Care, Primary Care Unit, The University of Cambridge, Cambridge, UK
Simon Etkind
Palliative and End of Life Care Group in Cambridge (PELiCam), Department of Public Health and Primary Care, Primary Care Unit, The University of Cambridge, Cambridge, UK
Ben Bowers
Palliative and End of Life Care Group in Cambridge (PELiCam), Department of Public Health and Primary Care, Primary Care Unit, The University of Cambridge, Cambridge, UK
Department of Palliative Medicine, LMU Munich, Munich University Hospital, Munich, Germany
Fliss Murtagh
Wolfson Palliative Care Research Centre, University of Hull, Hull, UK
Isla Kuhn
Medical Library, School of Clinical Medicine, The University of Cambridge, Cambridge, UK
Kathy Eagar
The Australian Health Services Research Institute, The University of Wollongong, Wollongong, Australia
Bárbara Antunes
Palliative and End of Life Care Group in Cambridge (PELiCam), Department of Public Health and Primary Care, Primary Care Unit, The University of Cambridge, Cambridge, UK
Palliative and End of Life Care Group in Cambridge (PELiCam), Department of Public Health and Primary Care, Primary Care Unit, The University of Cambridge, Cambridge, UK
Background: Despite the development of patient-centred or patient-reported outcome measures (PCOMs or PROMs) in palliative and end-of-life care over recent years, their routine use in practice faces continuing challenges. Objective: To update a highly cited literature review, identify and synthesise new evidence on facilitators, barriers, lessons learned, PCOMs used, models of implementation, implementation outcomes, costs, and consequences of implementing PCOMs in palliative care clinical practice. Methods: We will search MEDLINE, PsycINFO, CINAHL, Embase, Emcare, SCI-Expanded, SSCI, ESCI, and BNI. The database search will be supplemented by a list of studies from the expert advisory committee, hand-searching of reference lists for included articles, and citations of the original review. We will include primary studies using a PCOM during clinical care of adult patients with advanced disease in palliative care settings and extract data on reported models of implementation, PCOMs, facilitators, barriers, lessons learned, costs, and implementation outcomes. Gough’s Weight of Evidence Framework will be used to assess the robustness and relevance of the studies. We will narratively synthesise and tabulate the findings. This review will follow PRISMA, PRISMA-Abstract, PRISMA-P, and PRISMA-Search as the reporting guidelines. Source of funding: Marie Curie. The funder is not involved in designing or conducting this study. Protocol registration: CRD42023398653 (13/02/2023)
