HIV/AIDS: Research and Palliative Care (Nov 2022)

Experiences and Perceptions on Community Client-Led ART Delivery (CCLADS) Model of Antiretroviral (ART) Delivery: Patients’ and Providers’ Perspectives in South Western Uganda

  • Kasande M,
  • Taremwa M,
  • Tusimiirwe H,
  • Lamulatu K,
  • Amanyire M,
  • Nakidde G,
  • Kabami J

Journal volume & issue
Vol. Volume 14
pp. 539 – 551

Abstract

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Meble Kasande,1 Michael Taremwa,1 Happiness Tusimiirwe,1 Kabiite Lamulatu,1 Mark Amanyire,1 Gladys Nakidde,1 Jane Kabami1– 3 1Faculty of Nursing and Health Sciences, Bishop Stuart University, Mbarara city, Uganda; 2Department of Nursing, Kabale University School of Medicine, Kabale, Uganda; 3Infectious Diseases Research Collaboration, Kampala, UgandaCorrespondence: Jane Kabami, Tel +256706315810, Email [email protected]: Community Client-Led ART Delivery groups (CCLADS) were introduced as part of the differentiated service delivery models in 2017 to better serve growing number of HIV patients and reduce unnecessary burden on the HIV care delivery system. However, there is limited evidence on the exact patients’ and care providers’ experiences and perceptions regarding the CCLADS model of ART delivery. We therefore aimed to explore the experiences and perceptions on CCLADS model from the patient and provider perspectives.Participants and Methods: A descriptive qualitative study was conducted at two ART clinics in Southwestern Uganda. We conducted in-depth interviews (IDI) to get a deeper understanding of the patient and providers’ perspective regarding the model. Responses from participants were recorded using audio recorders and were translated and transcribed. We used thematic approach to analyze the data.Results: A total of 20 in depth interviews were conducted, with providers, CCLAD leaders and Adults Living with HIV (ALHIV) to assess the experiences and perceptions to participation among People Living with HIV (PLHIV) enrolled in CCLADS and the care providers. Key themes included benefits, limitations, experiences and perceptions of CCLADS. Benefits to ALHIV included: Longer refills, reduced transport costs, receive drugs in time, peer advice; to providers: time saving, less tiresome and reduced congestion at facility. Barriers included: stigma, limited outreaches, failure to comply. Patients perceived the model positively (cost effective, improved quality care, no missed appointment where as others were negative (blood samples not taken like before). Experiences also included enough time, learnt some activities and good adherence.Conclusion: Participation in the CCLADS groups provides several benefits to the patient including reduced transport, longer refills and good adherence. Stigma remains a challenge to CCLADS participation, which requires innovative and collaborative strategies from Ministry of Health (MOH) and implementation partners to address in order to sustain CCLADS participation.Keywords: CCLADs, community client led ART delivery models, participation, adult HIV people

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