Genomic testing for children with interstitial and diffuse lung disease (chILD): parent satisfaction, understanding and health-related quality of life

• John Christodoulou,
• Claire Wakefield,
• Adam Jaffe,
• David S Armstrong,
• Hiran Selvadurai,
• Andre Schultz,
• Tim McDonald,
• David Mowat,
• Joanne Harrison,
• BRUCE BENNETTS,
• Nitin Kapur,
• Andrew Tai,
• Gladys Ho,
• Lauren Kelada,
• Nada Vidic,
• Kirsten Boggs,
• Suzanna Lindsey-Temple

Affiliations

John Christodoulou

Discipline of Genetic Medicine and Discipline of Child & Adolescent Health, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia

Claire Wakefield

Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children`s Hospital Randwick, Randwick, New South Wales, Australia

Adam Jaffe

School of Clinical Medicine, UNSW Medicine & Health, UNSW, Sydney, New South Wales, Australia

David S Armstrong

Department of Respiratory Medicine, Monash Children`s Hospital, Melbourne, Victoria, Australia

Hiran Selvadurai

Department of Respiratory Medicine, The Children`s Hospital at Westmead, Sydney, New South Wales, Australia

Andre Schultz

Department of Respiratory and Sleep Medicine, Perth Children`s Hospital, Perth, Western Australia, Australia

Tim McDonald

Paediatrics, Canberra Hospital, Canberra, Australian Capital Territory, Australia

David Mowat

School of Clinical Medicine, UNSW Medicine & Health, UNSW, Sydney, New South Wales, Australia

Joanne Harrison

Department of Paediatrics, University of Melbourne, Melbourne, Victoria, Australia

BRUCE BENNETTS

Discipline of Genetic Medicine and Discipline of Child & Adolescent Health, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia

Nitin Kapur

Department of Respiratory and Sleep Medicine, Queensland Children`s Hospital, South Brisbane, Queensland, Australia

Andrew Tai

Respiratory and Sleep Medicine, Women`s and Children`s Hospital Adelaide, North Adelaide, South Australia, Australia

Gladys Ho

Discipline of Genetic Medicine and Discipline of Child & Adolescent Health, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia

Lauren Kelada

Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children`s Hospital Randwick, Randwick, New South Wales, Australia

Nada Vidic

School of Clinical Medicine, UNSW Medicine & Health, UNSW, Sydney, New South Wales, Australia

Kirsten Boggs

Department of Clinical Genetics, Sydney Children’s Hospital Network, Westmead, New South Wales, Australia

Suzanna Lindsey-Temple

School of Clinical Medicine, UNSW Medicine & Health, UNSW, Sydney, New South Wales, Australia