Spanish Translation and Dissemination of EMPOWER Materials to Address Barriers to Pain Management at the End of Life

Abstract

Introduction: The Effective Management of Pain by Overcoming Worries to Enable Relief (EMPOWER) intervention is an evidence-supported approach for addressing barriers to pain management (e.g., patient/family concerns about addiction) at the end of life. Such barriers appear more pronounced among Spanish-speaking individuals. This study aimed to (1) translate EMPOWER materials into Spanish, (2) disseminate materials to hospices with ?25% Hispanic patients, and (3) survey hospices about the use and usefulness of materials. Methods: We back translated EMPOWER materials with harmonization, then disseminated materials to 242 hospices. Thereafter, we used a semistructured survey to assess use and usefulness of EMPOWER materials using univariate statistics and content analysis. Results: Thirty-eight hospice representatives responded (participation rate?=?15.7%). Respondents were primarily non-White (55.3%) and Hispanic (60.5%). Nealy half (47.4%) were nurses. A majority (81.6%) indicated they currently employ ?1 full-time English?Spanish bilingual team member. Among those who reported receiving the EMPOWER materials (n?=?29), 58.6% indicated they?or another staff member?used them with patients or families. Using a single-item rating (0?=?not useful to 10?=?very useful), respondents evaluated the English EMPOWER materials' usefulness as 7.6 (standard deviation [SD]?=?1.4) and Spanish materials as 8.4 (SD?=?1.4). Most (62.1%) indicated they would likely use EMPOWER materials in the future. Conclusion: Thematic findings suggest EMPOWER reinforces clinical education, promotes discussion about pain management, and helps address culturally specific barriers to care. EMPOWER appears to be a useful, easy to use, and promising intervention that can be implemented among both English- and Spanish-speaking populations.

Keywords

• disparities
• end-of-life care
• Hispanic patients
• hospice
• opioids