TH Open
(Apr 2024)
Disease Burden, Clinical Outcomes, and Quality of Life in People with Hemophilia A without Inhibitors in Europe: Analyses from CHESS II/CHESS PAEDs
- Pratima Chowdary,
- Richard Ofori-Asenso,
- Francis Nissen,
- Enrico F. Grazzi,
- Martynas Aizenas,
- Katya Moreno,
- Tom Burke,
- Beatrice Nolan,
- Jamie O'Hara,
- Kate Khair
Affiliations
- Pratima Chowdary
- ORCiD
- Katharine Dormandy Haemophilia and Thrombosis Centre, Royal Free London NHS Foundation Trust, London, United Kingdom
- Richard Ofori-Asenso
- Real-World Data Enabling Platform, Roche Products Ltd, Welwyn Garden City, United Kingdom
- Francis Nissen
- Department of Real-World Data, F. Hoffmann-La Roche Ltd, Basel, Switzerland
- Enrico F. Grazzi
- Health Economics and Outcomes Research, HCD Economics, Daresbury, United Kingdom
- Martynas Aizenas
- Department of Access Strategy, F. Hoffmann-La Roche Ltd, Basel, Switzerland
- Katya Moreno
- Department of Product Development and Medical Affairs, F. Hoffmann-La Roche Ltd, Basel, Switzerland
- Tom Burke
- Health Economics and Outcomes Research, HCD Economics, Daresbury, United Kingdom
- Beatrice Nolan
- Department of Haematology, Children's Health Ireland at Crumlin, Dublin, Ireland
- Jamie O'Hara
- Health Economics and Outcomes Research, HCD Economics, Daresbury, United Kingdom
- Kate Khair
- Department of Research, Haemnet, London, United Kingdom
- DOI
-
https://doi.org/10.1055/s-0044-1785524
- Journal volume & issue
-
Vol. 08,
no. 02
pp.
e181
– e193
Abstract
Read online
Introduction Limited data relating to treatment burden, quality of life, and mental health burden of hemophilia A (HA) are currently available.
Keywords
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