Health Expectations (May 2021)

Patient involvement in developing a patient‐targeted feedback intervention after depression screening in primary care within the randomized controlled trial GET.FEEDBACK.GP

  • Tharanya Seeralan,
  • Martin Härter,
  • Cornelia Koschnitzke,
  • Michael Scholl,
  • Sebastian Kohlmann,
  • Marco Lehmann,
  • Marion Eisele,
  • Lea‐Elena Braunschneider,
  • Gabriella Marx,
  • Martin Scherer,
  • Bernd Löwe,
  • Julia Luise Magaard,
  • Anna Levke Brütt

DOI
https://doi.org/10.1111/hex.13039
Journal volume & issue
Vol. 24, no. S1
pp. 95 – 112

Abstract

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Abstract Background Patient and public involvement (PPI) is increasingly required in mental health services research. To empower patients to actively address depression, the GET.FEEDBACK.GP study evaluates a patient‐targeted feedback intervention after depression screening using the Patient Health Questionnaire (PHQ‐9). Objective To refine the patient‐targeted feedback from a previous study within a participatory research team (PRT) by conducting workshops to investigate patients' needs and preferences for feedback. To evaluate the process and outcome of PPI. Design Patient and public involvement was carried out on the levels of collaboration and consultation. A PRT of patient partners and researchers planned and conducted three workshops with patients. Patients' needs were investigated using a focus group. Participants prioritized needs, discussed feedback drafts and evaluated two drafts using cognitive debriefings. Researchers of the PRT communicated the results at project level. PPI was evaluated using the Public and Patient Engagement Evaluation Tools (PPEET). Setting and Participants A purposeful sampling of N = 12 patients with experiences of depression participated in at least one workshop. Results Relevant content‐related needs about feedback (eg no distinction between severe and moderate symptoms), recommendations for action and patient‐relevant information were considered. Needs for comprehensible, valuing, nonstigmatizing language and design elements (eg dimensional bar) were implemented. Workshops and PRT were positively evaluated. Discussion and Conclusions Patient and public involvement influenced the content, wording and design of the feedback. Strengths include two levels of PPI, methodical diversity and purposeful sampling. Limitations include the lack of inclusion of patients who are unaware of their depression. The evaluated PPI concept can be useful for future studies.

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