Journal of Clinical and Translational Science (Aug 2018)

Facilitators of research registry enrollment and potential variation by race and gender

  • Crystal M. Glover,
  • Christina Creel-Bulos,
  • Lisa M. Patel,
  • Scarlett Ellis During,
  • Karen L. Graham,
  • Yadira Montoya,
  • Susan Frick,
  • Judy Phillips,
  • Raj C. Shah

DOI
https://doi.org/10.1017/cts.2018.326
Journal volume & issue
Vol. 2
pp. 234 – 238

Abstract

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IntroductionLittle is known about what motivates people to enroll in research registries. The purpose of this study is to identify facilitators of registry enrollment among diverse older adults.MethodsParticipants completed an 18-item Research Interest Assessment Tool. We used logistic regression analyses to examine responses across participants and by race and gender.ResultsParticipants (N=374) were 58% black, 76% women, with a mean age of 68.2 years. All participants were motivated to maintain their memory while aging. Facilitators of registry enrolled varied by both race and gender. Notably, blacks (estimate=0.71, p<0.0001) and women (estimate=0.32, p=0.03) were more willing to enroll in the registry due to home visits compared with whites and men, respectively.ConclusionsResearchers must consider participant desire for maintaining memory while aging and home visits when designing culturally tailored registries.

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