Canadian Journal of Kidney Health and Disease (Dec 2014)

Organ Donation and Transplantation in Canada: Insights from the Canadian Organ Replacement Register

  • Sang Joseph Kim,
  • Stanley SA Fenton,
  • Joanne Kappel,
  • Louise M Moist,
  • Scott W Klarenbach,
  • Susan M Samuel,
  • Lianne G Singer,
  • Daniel H Kim,
  • Kimberly Young,
  • Greg Webster,
  • Juliana Wu,
  • Frank Ivis,
  • Eric de Sa,
  • John S Gill

DOI
https://doi.org/10.1186/s40697-014-0031-8
Journal volume & issue
Vol. 1

Abstract

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Purpose of review: To provide an overview of the transplant component of the Canadian Organ Replacement Register (CORR). Findings: CORR is the national registry of organ failure in Canada. It has existed in some form since 1972 and currently houses data on patients with end-stage renal disease and solid organ transplants (kidney and/or non-kidney). The transplant component of CORR receives data on a voluntary basis from individual transplant centres and organ procurement organizations across the country. Coverage for transplant procedures is comprehensive and complete. Long-term outcomes are tracked based on follow-up reports from participating transplant centres. The longitudinal nature of CORR provides an opportunity to observe the trajectory of a patient's journey with organ failure over their life span. Research studies conducted using CORR data inform both practitioners and health policy makers alike. Implications: The importance of registry data in monitoring and improving care for Canadian transplant candidates/recipients cannot be over-stated. This paper provides an overview of the transplant data in CORR including its history, data considerations, recent findings, new initiatives, and future directions.