Consensus guidelines on managing Rett syndrome across the lifespan

• Cary Fu,
• Dallas Armstrong,
• Eric Marsh,
• David Lieberman,
• Kathleen Motil,
• Rochelle Witt,
• Shannon Standridge,
• Paige Nues,
• Jane Lane,
• Tristen Dinkel,
• Monica Coenraads,
• Jana von Hehn,
• Katie Hale,
• Bernhard Suter,
• Daniel Glaze,
• Jeffrey Neul,
• Alan Percy,
• Timothy Benke

Affiliations

Cary Fu

Pediatrics and Neurology, Vanderbilt University Medical Center, Nashville, Tennessee, USA

Dallas Armstrong

Neurology, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA

Eric Marsh

Neurology, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA

David Lieberman

Neurology, Boston Children's Hospital, Boston, Massachusetts, USA

Kathleen Motil

Pediatrics, Baylor College of Medicine, Houston, Texas, USA

Rochelle Witt

Neurology, Boston Children's Hospital, Boston, Massachusetts, USA

Shannon Standridge

Pediatrics, University of Cincinnati College of Medicine, Cincinnati, Ohio, USA

Paige Nues

International Rett Syndrome Foundation, Cincinnati, Ohio, USA

Jane Lane

Civitan International Research Center, The University of Alabama at Birmingham School of Medicine, Birmingham, Alabama, USA

Tristen Dinkel

Neurology, Children's Hospital Colorado, Aurora, Colorado, USA

Monica Coenraads

Rett Syndrome Research Trust, New York, New York, USA

Jana von Hehn

Rett Syndrome Research Trust, New York, New York, USA

Katie Hale

Pediatric Medicine, UCSF Benioff Children's Hospital Oakland, Oakland, California, USA

Bernhard Suter

Pediatrics and Neurology, Baylor College of Medicine, Houston, Texas, USA

Daniel Glaze

Pediatrics and Neurology, Baylor College of Medicine, Houston, Texas, USA

Jeffrey Neul

Vanderbilt Kennedy Center, Nashville, Tennessee, USA

Alan Percy

Pediatrics, Neurology, Neurobiology, Genetics, and Psychology, The University of Alabama at Birmingham School of Medicine, Birmingham, Alabama, USA

Timothy Benke

Neurology, Children's Hospital Colorado, Aurora, Colorado, USA