International Journal of Qualitative Studies on Health & Well-Being (Jan 2021)

The meaning of being a visiting child of a seriously ill parent receiving care at the ICU

  • Susanne Knutsson,
  • Marie Golsäter,
  • Karin Enskär

DOI
https://doi.org/10.1080/17482631.2021.1999884
Journal volume & issue
Vol. 16, no. 1

Abstract

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Purpose Children’s visits to the ICU are still restricted, and more focus on the child’s own needs and experiences are needed. The aim of this study is to illustrate the meaning of being a visiting child of a seriously ill parent receiving care at the ICU. Method A qualitative descriptive design was used, with open-ended interviews with seven children (6–18 years) performed and analysed using a phenomenological research approach. Findings Being a visiting child of a seriously ill parent receiving care at the ICU is described as a life situation taking place in an unfamiliar environment, characterized by a heartfelt, genuine desire to be there, in an interdependence entailing offering a loved one the help they need while at the same time being seen in a compassionate way and being able to share, revealing a sudden awakening of an inner truth of reality and a sense of a healing wisdom of understanding. Conclusions The children felt good when they visited their ill parent, but at the same time not fully involved, and desired a more compassionate, caring approach by the nurses. Improvements are needed in how to approach visiting children in a more individual and caring way.

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